Rock_Robster wrote:Hey Alexandra,
Just a random thought, but I’m wondering given you’re seeing much higher numbers than many, are the units of measure and test method the same in Denmark as in the US? I believe here in Australia they quote it in nanograms per mL (ng/mL).
In terms of the results themselves, there was some research a while ago which suggested a CEA >200 at diagnosis had prognostic value (this was incorporated into Fong’s Clinical Risk Score), but I haven’t seen any stratification beyond that level. Just anecdotally from my observation it seems that response to treatment is probably more important that the initial number.
radnyc wrote:Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern.
https://watermark.silverchair.com/hyl11 ... 8jKdvc7O-r
AlexandraZ wrote:radnyc wrote:Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern.
https://watermark.silverchair.com/hyl11 ... 8jKdvc7O-r
Thanks! I couldn't open the link, but that sounds interesting. Yeah it's definitely not the norm. I recall seeing a CEA of 29,000 or so on someone's signature on here, but I've never seen anything higher than that. Hope FOLFOX does the trick and knocks his CEA down.
radnyc wrote:AlexandraZ wrote:radnyc wrote:Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern.
https://watermark.silverchair.com/hyl11 ... 8jKdvc7O-r
Thanks! I couldn't open the link, but that sounds interesting. Yeah it's definitely not the norm. I recall seeing a CEA of 29,000 or so on someone's signature on here, but I've never seen anything higher than that. Hope FOLFOX does the trick and knocks his CEA down.
Try this link:
https://www.ncbi.nlm.nih.gov/m/pubmed/17060406/
zx10guy wrote:
That's the same article I referenced in my thread about my crazy CEA numbers.
To contribute to this thread, my CEA when first diagnosed was 13.9. It dropped to just above normal for 4 years (depending on if my blood work was done under the Siemans Bayer assay method or the Roche). It jumped to a high of 11 at the 4 year mark and a colonoscopy caught a cancerous polyp in my appendix which required a right hemicolectomy. CEA dropped back down to 5.4. My oncologist wasn't totally convinced the polyp was the cause of the CEA jump. The following year was the start of my crazy CEA journey which for about two years had numbers ranging from 11 to 20 with no evidence of cancer found on multiple CT scans. At the initial discovery of the jump, I went through CT, PET, MRI, small bowel capsule endoscopy, upper GI endoscopy, and colonoscopy exams which found nothing. Recently my CEA jumped to 52. Again I went through a CT, MRI, and PET with no evidence of cancer activity found.
_Jelen90 wrote:I am not of any help here regarding the CEA levels but just wanted to send some positive thoughts your way. My husband was also diagnosed a 28.
I am hoping it gets better for your boyfriend. Hugs ❤
AlexandraZ wrote:zx10guy wrote:
That's the same article I referenced in my thread about my crazy CEA numbers.
To contribute to this thread, my CEA when first diagnosed was 13.9. It dropped to just above normal for 4 years (depending on if my blood work was done under the Siemans Bayer assay method or the Roche). It jumped to a high of 11 at the 4 year mark and a colonoscopy caught a cancerous polyp in my appendix which required a right hemicolectomy. CEA dropped back down to 5.4. My oncologist wasn't totally convinced the polyp was the cause of the CEA jump. The following year was the start of my crazy CEA journey which for about two years had numbers ranging from 11 to 20 with no evidence of cancer found on multiple CT scans. At the initial discovery of the jump, I went through CT, PET, MRI, small bowel capsule endoscopy, upper GI endoscopy, and colonoscopy exams which found nothing. Recently my CEA jumped to 52. Again I went through a CT, MRI, and PET with no evidence of cancer activity found.
Wow, that's very interesting. Is 52 the highest it's been?
Zod wrote:For what it's worth, in US for me at least units are ng/ml (two cancer centers, both in California).
By happenstance, I had CEA done twice in 2 days at different labs. One was 1.6 and the other was 3.4. Values evidently, at least for low values, can vary by a factor of 2 is appears.
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