Just need to vent because I’m angry

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boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Just need to vent because I’m angry

Postby boxhill » Thu Nov 21, 2019 9:55 am

Good news! I'm glad she has worked through it this far. Hope she continues to surmount her challenges.

I gather you drove the 4 hours to take her home? You are a champ!

I'm sure it was particularly important for her to have your in-person support after she took this big step, but for the future you should look into local transportation available to hospital/cancer patients. And I'm sure she has local friends who would be happy to take her to infusions and bring her home.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Just need to vent because I’m angry

Postby AmyG » Thu Nov 21, 2019 1:56 pm

So currently, I'm on FOLFOX and get the take home pump (was also on Avastin before liver resection) and I have zero nausea issues. I get steroids and anti nausea meds before infusion and stay on them until disconnected. Let your sister know that some random internet stranger doesn't get sick so maybe she won't either!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!


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