10 Years and Counting

Please feel free to read, share your thoughts, your stories and connect with others!
debb
Posts: 178
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: 10 Years and Counting

Postby debb » Fri Nov 15, 2019 12:42 pm

Hi SF! So great for you to check in and give inspiration to others. It was due to your story that I pursued HIPEC and for that, I will always be grateful. I'm here 11 years after my diagnosis, and this place is/was such an amazing source of information. I have have had various treatments and surgeries over the years, and have worried a lot about all things cancer. But I have also lived every day to the fullest and have not missed one minute of my children's childhood. I wish you much peace and happiness.
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One+ year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin
1/19 rib mets again, radiation, folfiri & avastin

fumaros
Posts: 271
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 10 Years and Counting

Postby fumaros » Sun Nov 17, 2019 1:46 pm

That is amazing news. Congratulations. :D
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

kiwiinoz
Posts: 1133
Joined: Thu Jan 03, 2013 11:44 pm

Re: 10 Years and Counting

Postby kiwiinoz » Sun Nov 17, 2019 5:51 pm

Hi Skifletch
Good to hear from you and thanks for posting. You, along with Brownbagger, were sources of hope and inspiration when I needed it the most.
Appreciate you coming back on to continue to give hope.
Cheers dude.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

Cured
Posts: 535
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: 10 Years and Counting

Postby Cured » Sun Nov 17, 2019 7:34 pm

SkiFletch- it is good of you to make the optimistic post. People need hope. Even though some will suffer more than us.
I thought I was cured and was cured for 10 years. Even though my cancer came back, I don’t regret thinking that or posting encouragingly.

I’m at 11 and 1/2 years now- still kicking and feeling good.
God is great in all.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgeon Remvd 90%Rectum,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
Folfiri
CEA to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7
12 rds Folfiri
Avastin evy 3 wks
Had Seizure Anti-seizure meds work-no driving for 6 months
Neuro allows me to drive again 0 meds

thubler
Posts: 57
Joined: Tue Sep 27, 2016 9:22 am

Re: 10 Years and Counting

Postby thubler » Sun Nov 17, 2019 10:38 pm

This is amazing news! Congrats for your health and inspiration!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18,01/24/19
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18, 01/08/19
Deported 11/03/17

User avatar
PGLGreg
Posts: 1427
Joined: Sat Nov 04, 2006 12:38 am
Location: Waimanalo, HI

Re: 10 Years and Counting

Postby PGLGreg » Fri Nov 22, 2019 5:11 pm

Good to hear from you and congratulations. It's going on 14 years, for me, after a less interesting 2a rectal cancer.
Greg
stage 2a rectal cancer 11/05 at age 63
LAR 12/05 with adjuvant radiation+5FU,leucovorin 1-2/06
NED for 12 years, cured

Nat
Posts: 73
Joined: Mon Apr 06, 2009 1:56 am
Location: Victoria BC Canada

Re: 10 Years and Counting

Postby Nat » Sat Nov 23, 2019 6:21 pm

10 years for me, too, had my last chemo session Oct 20, 2009. I haven't been here in years and I couldn't remember my username or password to get in but I looked back and found my first post and tada here I am!

I just read a newspaper article about someone who had colon cancer at 30 yrs old in 2011 and the lack of resources for young adults with cancer. I was 38 in 2009 when I was diagnosed with stage 3 and I thought what a shame that young person wasn't aware of the Colon Club back then, it was such a source of knowledge and comfort for me. So I looked it up and am so pleased that it's still here! Good luck to everyone still going through their cancer journey.
Discovered colon cancer (Stage IIIC) March 2009 during surgery for appendicitis at age 38
Colon resection and 5/21 pos
Finished Folfox Oct 2009
Mom to 7yo boy and 5yo girl

Mattie
Posts: 66
Joined: Fri Mar 07, 2014 1:06 am

Re: 10 Years and Counting

Postby Mattie » Fri Nov 29, 2019 2:10 pm

Nice to see your post Ski.....from another oldie still hanging in.....:-)
4/10 debulk, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Radiation treatments post surgery
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 reached NED, sticking with Xeloda/Avastin
8/17 maintaining NED Dropping Xeloda. Avastin only.
12/19 still NED Avastin only.

jens22
Posts: 1011
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: 10 Years and Counting

Postby jens22 » Sat Nov 30, 2019 12:54 am

Dear Friend,
4 months after you were diagnosed Got the big hit too. You helped me and inspired me to hit that 9 year mark of being Cancer free!! We have lost so many active members along the way and many had surgery, Chemo Radiation ETC and beat cancer and never looked back to this group. Its are job to give back, support teach and motivate. Thank you Mike for doing that.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

weisssoccermom
Posts: 5959
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: 10 Years and Counting

Postby weisssoccermom » Sun Dec 01, 2019 12:25 am

Hi Fletch,
I've often wondered what happened to you....how you are doing, etc? I'm so glad you came back to give us all an update. For whatever reason, I always associated you with Eric (brownbagger) and CrGuy. It's like the three of you were the THREE MUSKETEERS. I remember when you got married and then had a baby.....you were on Cloud nine! It is a little scary sometimes when you don't hear from one of the 'old timers' because then you worry that they've passed away from the disease. So glad to hear that you are doing well and now hit the TEN year mark!

You give those who are relatively new HOPE....and that's a good thing. I'm 13.5 years from my diagnosis and although I am around, I tend not to participate as much on the forum. When I saw the title '10 Years and Counting'...I had to click on it to see who it was. Like I said earlier, I'm so glad to hear that you are doing well.

I hope that you and your family enjoy a wonderful and Blessed Christmas and a very Happy New Year! Don't wait another 10 years to pop in and let us know how you are doing! There are still a bunch of us 'old timers' still around.

Hugs
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

mpbser
Posts: 935
Joined: Wed Apr 19, 2017 11:52 am

Re: 10 Years and Counting

Postby mpbser » Sun Dec 01, 2019 5:34 am

I love seeing this. Thank you so much for sharing!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

User avatar
Russian27
Posts: 490
Joined: Sun May 17, 2009 9:47 am

Re: 10 Years and Counting

Postby Russian27 » Mon Dec 02, 2019 7:07 am

So wonderful to see so many old-timers! Great to hear from you Fletch!
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

User avatar
DBF
Posts: 314
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: 10 Years and Counting

Postby DBF » Mon Dec 02, 2019 10:38 pm

Hi! So happy to see your post. Congrats on ten years!! I remember being comforted by your signature quote way back when. All the best, Donna
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :D
Mom to 3 boys: 21, 9 & 6

User avatar
Rob in PA
Posts: 1998
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: 10 Years and Counting

Postby Rob in PA » Fri Dec 06, 2019 11:44 am

From one "old timer" to another....CHEERS and CONGRATULATIONS!!!!!

Us survivors smile instead of frown when someone complains about getting old.

I just smile and think "Damn right I'm getting old...beats the alternative"! :shock: :shock: :shock: 8)

Great news Fletch, and thanks for keeping that promise of checking in at 10 years.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

Ukmckw
Posts: 1
Joined: Fri Dec 06, 2019 4:27 pm

Re: 10 Years and Counting

Postby Ukmckw » Fri Dec 06, 2019 4:55 pm

Wow this is both my first time looking at boards like this and indeed posting since my diagnosis. Just great to hear people surviving and living well. My nurses have told me of 5 year plus patients in similar situations to me but it's great to hear people actually doing it. Particularly after the only thing I've really since DX on line is scare myself with survival stats.

It gives me something to hope for whilst just trying to live my life one day at a time and enjoy every well day with my family. So thanks, what started as a quick Google about whether chemo causes hiccups has made my day.
UK 34 y.o man. Dad to a 2 y.o boy with another on the way.
First symptoms 3/19. Investigated for haemorrhoids (in fairness they found some)
Symptoms got worse 9/19. Referred for colonoscopy to rule out colitis
10/19 tumor causing bowel obstruction found. Staging CT found single met to liver and multiple in both lungs.
Surgery for colonoscopy and primary tumor removal DX + 4 days.
11/19 started Folfiri

Feeling lucky for all the time I get & having a really supportive family, friends and colleagues


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 32 guests