10 Years and Counting

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stevieb
Posts: 407
Joined: Sat Feb 09, 2013 12:26 am

Re: 10 Years and Counting

Postby stevieb » Sun Dec 08, 2019 3:32 pm

Congratulations and wishes of many more to come!!!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: 10 Years and Counting

Postby mymom » Tue Feb 02, 2021 6:00 pm

Hello there! I come back here from time to time to report in. I remember you from way back when and you gave me so much hope. I am so glad I came across this post. My mom is still doing well 10 years after diagnosis and a bit over five years NED. Take care and congratulations.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

User avatar
barbara jayne
Posts: 759
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: 10 Years and Counting

Postby barbara jayne » Sat Feb 13, 2021 4:44 pm

Hi Skifletch,
I remember you so well, and am so delighted to hear you are still well, I passed my 13 yr cancerversary in January of this year.
Thanks for checking in, I often wonder how everyone is doing, this forum was an absolute lifeline for me when I was diagnosed, I still check into read every few months.
Survivors guilt seems to hang around most of us at some stage of recovery, once I got over the shock of actually still being here, I often wonder why I’ve seen so many beautiful people not make it long term.
Thanks also to all the old timers like myself who have commented on this thread, it’s just so good to see all your names popping up... I still miss, and will never forget our friends who didn’t make it this far !
Best wishes SkiFletch and to you all for the future x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

I_will_fight
Posts: 62
Joined: Mon Jun 29, 2020 3:38 pm

Re: 10 Years and Counting

Postby I_will_fight » Sun Feb 14, 2021 12:41 am

Hi Skifletch,

For newcomers like me, It is inspiring to read your story.

Also to see all the answers from so many other oldtimers is a very encouraging thing!

Am I the only one frantically scanning the signatures and getting a little bit reassured and a little bit more hopeful every time someone's signature reads that they were diagnosed ten years ago?

Guys and gals, just by surviving and providing an update you are helping!

Big thank you, and good luck!
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

jumpman50512
Posts: 12
Joined: Thu Jan 10, 2019 10:36 pm

Re: 10 Years and Counting

Postby jumpman50512 » Tue Feb 16, 2021 3:44 pm

congrats i hope to be there sometime also
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
CEA currently at 5.6 (maybe due to marijuana)

stu
Posts: 1444
Joined: Sat Aug 17, 2013 5:46 pm

Re: 10 Years and Counting

Postby stu » Wed Feb 17, 2021 1:11 pm

Hi Jumpman,

Any further forward with you CEA ?
Stu
ps looking forward to seeing your name on here too!
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Lois7718
Posts: 65
Joined: Sat Jul 24, 2010 10:10 pm
Facebook Username: Lois Rivet

Re: 10 Years and Counting

Postby Lois7718 » Mon Mar 01, 2021 11:46 pm

Congrats!

I was thinking about Dress in Blue day this coming Friday and randomly decided to check out the board. According to the stats it’s been 7 years since I last logged in, almost 9 since I lost Bill5107.

So glad to see some of his old CC pals doing well. I’m sure he’s still cheering you all on!

Lois7718
Wife of Bill5107
DX 7/10 Stage III


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