Surgery here, and done.

Please feel free to read, share your thoughts, your stories and connect with others!
Mohrfamily
Posts: 249
Joined: Tue May 22, 2018 4:04 pm

Surgery here, and done.

Postby Mohrfamily » Tue Nov 12, 2019 7:42 pm

DH and I started this journey a year and a half ago, spending a lot of that time wondering how long we had. If your reading this you know to some extent that so I won't yack about it.

OSU gave us more. Today they resected his colon and placed an original HAI pump.

No surprises, disease was only present in the colon and the liver. The colon surgeon mentioned he could see how the tumor had shrunk from the chemo. Nothing was found anywhere else. The liver surgeon mentioned talking about pump treatment or this or that and I told her I know my husband and when he is green lighted for anything, he will do anything and everything meaning pump AND systemic. She smiled and was like that's great to hear.

So happy and so thankful
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

radnyc
Posts: 432
Joined: Tue Apr 06, 2010 6:32 pm

Re: Surgery here, and done.

Postby radnyc » Tue Nov 12, 2019 7:47 pm

Great news! Sounds like everything went as planned, stay positive and strong!
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

Punky44
Posts: 438
Joined: Mon Oct 01, 2018 4:29 pm

Re: Surgery here, and done.

Postby Punky44 » Tue Nov 12, 2019 8:03 pm

Great news, I know you were worried about surgery—happy you got a great report and all went well.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 2.1; 1.9; 2.6; 2.8
6/28/19 Reversal and port out
10/22/19: CT showed new nodules
1/28/20: CT showed nodules shrinking

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
ginabeewell
Posts: 414
Joined: Wed Oct 24, 2018 10:30 am

Re: Surgery here, and done.

Postby ginabeewell » Tue Nov 12, 2019 9:02 pm

So glad it all went well and hope his recovery continues to go smoothly. That operation for me was the easiest of my three; still i felt worse on Day 2 than I did the day after - probably because anesthesia wore off!

Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Mohrfamily
Posts: 249
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Tue Nov 12, 2019 9:23 pm

ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!


He had an epidural catheter before surgery so that should keep him comfy for a bit
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

User avatar
ginabeewell
Posts: 414
Joined: Wed Oct 24, 2018 10:30 am

Re: Surgery here, and done.

Postby ginabeewell » Tue Nov 12, 2019 9:39 pm

Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!


He had an epidural catheter before surgery so that should keep him comfy for a bit


Oh that’s perfect. My first surgery, they were worried about the fact that I had only one kidney and basically tried to control the pain with Tylenol. The nurse said she couldn’t call anyone; by the time the doctors saw me at rounds early the next morning, I was literally writhing in pain!

Didn’t happen again. ; )

This last time I had an epidural and it was great.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

User avatar
CRguy
Posts: 10146
Joined: Sun Feb 10, 2008 6:00 pm

Re: Surgery here, and done.

Postby CRguy » Wed Nov 13, 2019 1:37 am

Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!

He had an epidural catheter before surgery so that should keep him comfy for a bit


Getting pain under control BEFORE it sets in IS 100% the way to go !!!!!

With epidurals ( had a few :shock: ) they need to watch for urinary retention after they are finished.
Make sure you and hubby know to keep bugging the nurses about urine outputs after the epidural is out.

Sometimes it takes a while and they may need to catheterize him, to empty the bladder before it starts up on its own.

BTDT :twisted:

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Mohrfamily
Posts: 249
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Wed Nov 13, 2019 5:07 am

CRguy wrote:
Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!

He had an epidural catheter before surgery so that should keep him comfy for a bit


Getting pain under control BEFORE it sets in IS 100% the way to go !!!!!

With epidurals ( had a few :shock: ) they need to watch for urinary retention after they are finished.
Make sure you and hubby know to keep bugging the nurses about urine outputs after the epidural is out.

Sometimes it takes a while and they may need to catheterize him, to empty the bladder before it starts up on its own.

BTDT :twisted:

Best wishes
CRguy


He mention feeling like he had to pee but was afraid to go, I told him not to worry about it (catheter) seemed to relax some. Now having sternum pain but everything looks ok after EKG and chest xray. Even tried a few breathing exercises and did ok with a few.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Surgery here, and done.

Postby MeAndMine » Wed Nov 13, 2019 7:42 am

That's excellent news!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Surgery here, and done.

Postby MetastaticEquilibria » Wed Nov 13, 2019 8:16 am

Good luck with the pump!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Surgery here, and done.

Postby NHMike » Wed Nov 13, 2019 10:20 am

Happy things are going well for him.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Jack&KatiesMommy
Posts: 613
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Surgery here, and done.

Postby Jack&KatiesMommy » Wed Nov 13, 2019 10:26 am

So happy for you both! Hoping for only good news for you in the future!

Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Surgery here, and done.

Postby Gravelyguy » Wed Nov 13, 2019 10:55 am

What wonderful news! Praying that the next steps go smoothly and you guys can live NED for years!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

Claudine
Posts: 352
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgery here, and done.

Postby Claudine » Wed Nov 13, 2019 11:00 am

Fantastic!! Here's to many years of NED life for you guys!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 7.6
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 small uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

Mohrfamily
Posts: 249
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Wed Nov 13, 2019 4:22 pm

I just want to thank everyone who has followed me around on here, the thoughts and prayers.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Alex83, beach sunrise and 30 guests