Happy Birthday to me!!

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AmyG
Posts: 282
Joined: Tue Dec 25, 2018 8:08 pm

Happy Birthday to me!!

Postby AmyG » Mon Nov 04, 2019 10:51 am

And here I sit, waiting for chemo. But!!!! This is round 10 of 12. There's a light at the end of the tunnel, so I consider that a great birthday gift. :lol:

2 more to go. I got this.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Siti
Posts: 81
Joined: Thu Aug 01, 2019 10:58 am

Re: Happy Birthday to me!!

Postby Siti » Mon Nov 04, 2019 10:59 am

Love your positivity AmyG :) Happy Birthday to you!
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

Claudine
Posts: 173
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Happy Birthday to me!!

Postby Claudine » Mon Nov 04, 2019 11:00 am

Bon anniversaire !!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now at 5.0 (twice)
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

rachelfromnyc
Posts: 17
Joined: Fri Oct 04, 2019 11:32 am

Re: Happy Birthday to me!!

Postby rachelfromnyc » Mon Nov 04, 2019 3:38 pm

Happy birthday Amy! I also had chemo today; it's just another thing on the to do this at this point. Love your attitude, wishing you a great day!

Rachel
37 at dx May '19, one month after my bday
5/19: 3.4 cm mass in transverse colon, enlarged distant lymph nodes, innumerable lung nodules; CEA 13.2 ng/mL
5/19: FNA of supraclavicular lymph nodes positive for disease
6/19 to 9/19: 6 cycles of FOLFOX; CEA 3.9 ng/mL
7/19: CEA 4.3 ng/ml
10/19: CT scan shows primary tumor stable, lymph nodes shrinking and disease progression in liver; CEA 4.8 ng/mL
10/19: Start FOLFIRI with Avastin, planned 6 rounds

Punky44
Posts: 383
Joined: Mon Oct 01, 2018 4:29 pm

Re: Happy Birthday to me!!

Postby Punky44 » Mon Nov 04, 2019 5:34 pm

Happy Birthday!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Rikimaroo
Posts: 263
Joined: Tue Dec 20, 2016 8:48 pm

Re: Happy Birthday to me!!

Postby Rikimaroo » Mon Nov 04, 2019 8:45 pm

Happy Birthday. I start Chemo on 6th 5 rounds to make a total of 12, folfiri. Definitely not looking forward to it, but expecting it to once and for all kill any micro cells.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left seminal vescial/pelvic sidewall - 10/7/2019 resection surgery, perm bag, requested
FolFiri 11/6 - 5 rounds

Rock_Robster
Posts: 380
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Happy Birthday to me!!

Postby Rock_Robster » Mon Nov 04, 2019 8:54 pm

Happy birthday Amy!

And go for it Rikimaroo - great to see more NRAS survivors here :D
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

User avatar
ginabeewell
Posts: 360
Joined: Wed Oct 24, 2018 10:30 am

Re: Happy Birthday to me!!

Postby ginabeewell » Mon Nov 04, 2019 11:48 pm

Happy birthday, Amy!

Only two more rounds - you can totally do that! And I hope you are making all kinds of plans for a post-chemo birthday makegood. You deserve one!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

radnyc
Posts: 408
Joined: Tue Apr 06, 2010 6:32 pm

Re: Happy Birthday to me!!

Postby radnyc » Tue Nov 05, 2019 7:52 am

Happy birthday fellow Scorpio, stay strong!
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

Cured
Posts: 535
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: Happy Birthday to me!!

Postby Cured » Tue Nov 05, 2019 10:49 am

Amy, Congratulations so far. May God give you more courage and healing.
Praying that all continues so good and that you have many years as your child grows-up.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgeon Remvd 90%Rectum,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
Folfiri
CEA to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7
12 rds Folfiri
Avastin evy 3 wks
Had Seizure Anti-seizure meds work-no driving for 6 months
Neuro allows me to drive again 0 meds

AmyG
Posts: 282
Joined: Tue Dec 25, 2018 8:08 pm

Re: Happy Birthday to me!!

Postby AmyG » Tue Nov 05, 2019 5:50 pm

Thanks yall!!

So, they sent me home due to low ANC. :roll: it's the first time I haven't had the right numbers for my bloodwork. But, that's okay. Trying again on Friday.

I was able to come home, enjoy my family and have a scrumptious birthday cake. Plus I got a roomba that mops! I adore my robots. This is the second one I have, the first being the original vacuum.

The things that make me happy. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Rock_Robster
Posts: 380
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Happy Birthday to me!!

Postby Rock_Robster » Tue Nov 05, 2019 9:04 pm

AmyG wrote:Thanks yall!!

So, they sent me home due to low ANC. :roll: it's the first time I haven't had the right numbers for my bloodwork. But, that's okay. Trying again on Friday.

I was able to come home, enjoy my family and have a scrumptious birthday cake. Plus I got a roomba that mops! I adore my robots. This is the second one I have, the first being the original vacuum.

The things that make me happy. :lol:

Sorry to hear Amy; neutrophils are a bugger. I managed to get through with mine dancing around 1.0-1.5, then I had a drug reaction that knocked them down to 0.2 so that put a dampener on things! Since then I’ve been also having Neulasta which makes a massive difference - back up to 4.6! Do you know if that’s something they’d be offering you?

I’d been toying with getting the Rooma that mops (Scuba?), but my house is a mix of carpet and hard floors so I’d be moving it around a lot... still I also love my robots so may have to give it a go after your experience :D
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

AmyG
Posts: 282
Joined: Tue Dec 25, 2018 8:08 pm

Re: Happy Birthday to me!!

Postby AmyG » Tue Nov 05, 2019 11:25 pm

I get my on body injector every cycle, my bone marrow is just lazy. Get to work damnit, you have one job!!

As for the mopping robot, it's amazing. My kitchen floor is so clean. We have 5 really big inside dogs, so this is a game changer. We also have zero carpet, so your mileage may vary!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Claudine
Posts: 173
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Happy Birthday to me!!

Postby Claudine » Wed Nov 06, 2019 10:57 am

I think my husband's chemo has been postponed 3 times (out of 15 Folfiri infusions so far) due to neutropenia. Once he had to wait an extra 2 weeks because of schedule conflicts. Every time his numbers went back up, and the extra wait didn't have any impact on his CEA levels. So I'd say enjoy the break!!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now at 5.0 (twice)
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

DarknessEmbraced
Posts: 3369
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Happy Birthday to me!!

Postby DarknessEmbraced » Wed Nov 06, 2019 11:49 am

Happy belated birthday and I hope your chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19


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