Neuropathy question

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Basil
Posts: 262
Joined: Thu Mar 16, 2017 12:33 pm

Neuropathy question

Postby Basil » Fri Nov 01, 2019 6:45 pm

My last folfox infusion was summer 2017 and my neuropathy completely resolved by early 2018. Over the last week or so I’ve had minor numbness on and off in my feet. Nothing to write home about but it’s gotten to become noticeable. Has anyone heard of neuropathy resolving for the better part of two years but then coming back?
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

Gravelyguy
Posts: 245
Joined: Thu Jul 05, 2018 6:03 pm

Re: Neuropathy question

Postby Gravelyguy » Sat Nov 02, 2019 6:22 am

Hi Basil,

My last chemo was March 2018. This past summer my neuropathy was pretty much gone. Now that the weather has turned a little colder, I have a little tingling on the bottom of my feet. I am just chalking it up to colder temps. I guess I will find out next summer!


Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Basil
Posts: 262
Joined: Thu Mar 16, 2017 12:33 pm

Re: Neuropathy question

Postby Basil » Sat Nov 02, 2019 11:54 am

Weather just turned here as well. I’ll chalk it up to that for now.
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

User avatar
ANDRETEXAS
Posts: 625
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Neuropathy question

Postby ANDRETEXAS » Sat Nov 02, 2019 12:28 pm

I finished chemo in August, 2014. I am Type 2 diabetic, so had a little neuropathy before chemo. I still have some, but I can live with it. My feet do act up when I go outside barefoot in cold weather. Put shoes on....no way. Don't have the time to fool with that lol
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

NHMike
Posts: 2302
Joined: Fri Jul 21, 2017 3:43 am

Re: Neuropathy question

Postby NHMike » Sat Nov 02, 2019 3:33 pm

I'm feeling it right now. It's 70 degrees but I'm under a blower motor and I feel cold. My fingers and toes are tingling of course. I haven't eaten since yesterday so the lack of food and the cold temps bring back the numbness.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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