I'm getting worried

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Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Sat Dec 21, 2019 4:06 am

Ok so I met other surgeon who will remove gallbladder. Basically said it's rare to have polyps and even more the size of mine and that we were taking it out to rule out malignancy / stop it early/ prevent it.
Primary also put in consult for me with nuerologist because I have been seeing some horizontal lines in vision and translucent yellow thing which eye Dr couldn't explain and I've been having memory and concentration issues , dropping things, fatigue that won't go away, pain all over and probably a bunch of other things I can't remember. I'm dizzy a lot of time, get tachycardia from walking and generally feel like crap. Prostate seems to be getting larger as well. Hopefully in next week or so I'll get a surgery date.

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Fri Feb 21, 2020 11:50 pm

Just thought I would do a quick update. Taking provigil now for the exhaustion. Brain is working much better and I'm able to do things now. Now I'm tired and not completely exhausted which is great.
Tuesday I have surgery to remove sigmoid colon and gallbladder.

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CRguy
Posts: 10251
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm getting worried

Postby CRguy » Sat Feb 22, 2020 12:32 am

Good that you are feeling better and moving forward with the plan !

Best wishes for a successful surgery and a gentle healing and recovery

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3528
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm getting worried

Postby DarknessEmbraced » Sat Feb 22, 2020 11:12 am

I'm glad you're feeling better! I hope that your surgery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 647
Joined: Fri Apr 06, 2018 11:40 am

Re: I'm getting worried

Postby boxhill » Sat Feb 22, 2020 11:20 am

Best of luck. I hope that these surgeries solve your problems and you can move forward in good health.

Keep us posted.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

SheriG
Posts: 3
Joined: Wed Feb 12, 2020 9:57 am
Facebook Username: sheri.goddard.756
Location: Dallas
Contact:

Re: I'm getting worried

Postby SheriG » Mon Feb 24, 2020 3:58 am

At such moments, the main thing is not to cheat yourself, you just need to call a doctor. If something bad happened, the doctor would tell you right away. I hope all will be ok! Have a nice day!

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Mon Feb 24, 2020 6:23 pm

Thanks everyone, surgery is at 730 am and I'll keep you all posted.

SheriG
Posts: 3
Joined: Wed Feb 12, 2020 9:57 am
Facebook Username: sheri.goddard.756
Location: Dallas
Contact:

Re: I'm getting worried

Postby SheriG » Tue Feb 25, 2020 2:05 am

Usmccolon wrote:Thanks everyone, surgery is at 730 am and I'll keep you all posted.

good luck!! :)

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Tue Feb 25, 2020 3:30 am

Not sure if they will cancel surgery or not. I stated feeling a little nauseous an hour after started antibiotics last night . Took metronidazole and neomycin sulfate. I threw up hour and a half after second dose of them and then again at 3am which was 4 hours after last dose. After I feel better and can drink water no problem.

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Tue Feb 25, 2020 6:39 pm

Finally in my room, no complications

boxhill
Posts: 647
Joined: Fri Apr 06, 2018 11:40 am

Re: I'm getting worried

Postby boxhill » Wed Feb 26, 2020 9:58 am

Good news! I hope it continues that way.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Thu Feb 27, 2020 8:58 pm

Just thought I would update. Still in hospital, passed gas yesterday then nothing, diahrea this morning then nothing. Bridge diet didn't go so well so I was back on liquid diet today. my right thigh was completely numb but has been regaining feeling. Only took out 6 to 8 inches of colon. The gallbladder surgeon saw me today and said from outside gallbladder looked normal and nothing looked like it was spreading to liver. Just waiting on pathology.

Funny thing is since I've been hospitalized I haven't needed any hypertension medications.

boxhill
Posts: 647
Joined: Fri Apr 06, 2018 11:40 am

Re: I'm getting worried

Postby boxhill » Thu Feb 27, 2020 9:23 pm

Sounds like more good news.

When I had surgery, I think I was on ice chips only for a day, then fluids--that cup of bouillon was the best thing I ever tasted! :) Then I started tiny, low-residue meals on maybe the third day? But I didn't achieve a bowel movement until the 6th/7th day, and that required a laxative plus a suppository plus a cup or two of coffee, so it seems to me that you are progressing very well! :)

Glad your BP is under control...maybe it is the relief of stress!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Fri Feb 28, 2020 8:42 pm

Got an email notification today for new documents in my health care file with colon surgeon. Pulled it up and it was pathology reports. Everything came back negative and I'm definitely relieved. I've been asking the nurses all day what's holding up my discharge and if sounds like I needed to fart again and my stomach was still hard. I farted tonight and stomach is soft so fingers crossed I'll be out of here tomorrow. Still hurts and going 1 and 2 are difficult but they are getting better.

Usmccolon
Posts: 39
Joined: Wed Oct 30, 2019 12:45 am

Re: I'm getting worried

Postby Usmccolon » Fri Jun 26, 2020 9:44 am

Going back to surgeons office today. Pain has been getting pretty bad and frequent around my upper left incision site. Doesn't look infected or anything but this last week it's really ramped up from hurting when I walk too fast at work to hurting a lot of the time even with rest. Sleep is getting difficult and now it's hurting when I wake up (as of this morning).


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