I'm getting worried

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Jannine
Posts: 181
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: I'm getting worried

Postby Jannine » Thu Oct 31, 2019 7:28 pm

Just want to chime in and say that I would not be happy about all those symptoms you're having either. Here's hoping you don't have cancer, and that you do get to the bottom of whatever's going on soon. Keep at your docs and get them to keep looking for an answer. It doesn't sound to me like a situation you should just shrug and accept. If you don't feel your doc is looking into your symptoms with the attention you need, find another doc. It's something we have to do in the cancer world, too.

I hope you get answers soon.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

boxhill
Posts: 387
Joined: Fri Apr 06, 2018 11:40 am

Re: I'm getting worried

Postby boxhill » Thu Oct 31, 2019 8:18 pm

I'll chime in and say that unless you are a real hypochondriac the combination of all of those symptoms worry me also.

I hope you don't have colon cancer, but it sounds like *something* is going on. Have you been evaluated for lupus, for example? (Not a doctor, nor do I play one on the internet)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

DarknessEmbraced
Posts: 3357
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm getting worried

Postby DarknessEmbraced » Wed Nov 06, 2019 11:59 am

I'm sorry you're going through this and I hope you get results soon!*hugs* I know how hard it is to wait for results. I have to wait 7 to 10 days for results.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19


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