Celebrating 10 years of survival today

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wifenurse
Posts: 164
Joined: Tue Feb 01, 2011 4:05 pm

Celebrating 10 years of survival today

Postby wifenurse » Tue Oct 29, 2019 7:49 pm

10 years ago today my 39 year old husband was diagnosed with Stage 4 Colorectal cancer with liver mets. It was a grueling year of treatment with radiation and continuous infusion of 5FU, followed by surgery with resection of the colorectal tumor and liver met, followed by 6 more months of chemo with Folfox and Avastin. Time was grim in those days and the friends we met here shared so much knowledge and life experience - it guided us through that year. We saw sad endings and happy outcomes as well. As unbelievable as it seemed at the time, today we are celebrating the 10 year mark cancer free. He has been in remission since the initial treatment and is considered cured. He has been here to watch our children graduate high school and college and start their professional lives. He had the opportunity to spend 3 years in his dream job with the US Marshall service. Our lives are full and healthy today. I hope his story provides hope to those in the battle. Hang in there - there are miracles!
Christy
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11

User avatar
CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: Celebrating 10 years of survival today

Postby CRguy » Tue Oct 29, 2019 11:35 pm

That is a major landmark and certainly deserves to be CELEBRATED !!!!!!!
Thank you for paying it forward with a message of hope.

Cheers and best wishes for NED forever

In Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Celebrating 10 years of survival today

Postby stu » Wed Oct 30, 2019 2:21 am

Delighted for you both . Such a lovely post .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Siti
Posts: 103
Joined: Thu Aug 01, 2019 10:58 am

Re: Celebrating 10 years of survival today

Postby Siti » Wed Oct 30, 2019 4:39 am

Thank you so much for coming back to give hope to everyone here. 10 years, and cured..that’s really an inspiration! I do hope my husband would stand a chance too, where 10 years down the road, I can come back here to celebrate, like you :)
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

MetastaticEquilibria
Posts: 63
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Celebrating 10 years of survival today

Postby MetastaticEquilibria » Wed Oct 30, 2019 5:29 am

Congratulations!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

Gravelyguy
Posts: 261
Joined: Thu Jul 05, 2018 6:03 pm

Re: Celebrating 10 years of survival today

Postby Gravelyguy » Wed Oct 30, 2019 9:11 am

Thank you so much for sharing. Your post brings so much hope!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Claudine
Posts: 186
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Celebrating 10 years of survival today

Postby Claudine » Wed Oct 30, 2019 9:38 am

I love it when NED folks come back to this forum with their story. Thank you!!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now 6.9
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

KathyLynn
Posts: 68
Joined: Thu Aug 31, 2017 3:40 pm
Location: Rock Hall, MD

Re: Celebrating 10 years of survival today

Postby KathyLynn » Wed Oct 30, 2019 12:03 pm

Congratulations!!!
8/2017. RC
11/27/2017. Robotic LAR. No chemo/rad
12/2017 Moderatley differentiated, 3.0 cm in greatest dimension
Macroscopic tumor perf: not identified. All margins of resection and proximal neg for tumor.
Lymphovascular and perineural invasion: not identified.
1/13/2018. T2N0M0 with isolated tumor cell (ITC)
7/2018. CEA 2.0. 10/18: 2.0. 1/19: 2.3 11/19. 2.1
11/19 CT NED

thubler
Posts: 57
Joined: Tue Sep 27, 2016 9:22 am

Re: Celebrating 10 years of survival today

Postby thubler » Thu Oct 31, 2019 1:10 pm

Congrats! This is awesome to hear! Its stories like yours that continues to give people hope they can beat this! God is good!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18,01/24/19
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18, 01/08/19
Deported 11/03/17

wife2jeff
Posts: 61
Joined: Thu Sep 12, 2019 11:21 pm

Re: Celebrating 10 years of survival today

Postby wife2jeff » Thu Oct 31, 2019 3:12 pm

Wow that is awesome! Thank you for sharing, as my husband has only had his 4th round of chemo after his colon resection, it's hard to see the end of the tunnel but your story and ones like these are very encouraging. Thank you for sharing.

rachelfromnyc
Posts: 21
Joined: Fri Oct 04, 2019 11:32 am

Re: Celebrating 10 years of survival today

Postby rachelfromnyc » Thu Oct 31, 2019 5:35 pm

Thank you for sharing. It's very inspiring for those of us currently going through it.
37 at dx May '19, one month after my bday
5/19: 3.4 cm mass in transverse colon, enlarged distant lymph nodes, innumerable lung nodules; CEA 13.2 ng/mL
5/19: FNA of supraclavicular lymph nodes positive for disease
6/19 to 9/19: 6 cycles of FOLFOX; CEA 3.9 ng/mL
7/19: CEA 4.3 ng/ml
10/19: CT scan shows primary tumor stable, lymph nodes shrinking and disease progression in liver; CEA 4.8 ng/mL
10/19: Start FOLFIRI with Avastin, planned 6 rounds

jens22
Posts: 1011
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Celebrating 10 years of survival today

Postby jens22 » Fri Nov 01, 2019 8:08 am

Thank you for keeping us positive. Enjoy everyday like you have been doing! THis is so wonderful!
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

boxhill
Posts: 404
Joined: Fri Apr 06, 2018 11:40 am

Re: Celebrating 10 years of survival today

Postby boxhill » Fri Nov 01, 2019 5:23 pm

That's wonderful!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

Koreysue
Posts: 130
Joined: Mon Apr 30, 2018 2:36 pm

Re: Celebrating 10 years of survival today

Postby Koreysue » Sat Nov 02, 2019 5:03 pm

Such good news. Thanks for sharing. Happy for you both
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2

mpbser
Posts: 935
Joined: Wed Apr 19, 2017 11:52 am

Re: Celebrating 10 years of survival today

Postby mpbser » Mon Nov 04, 2019 5:45 am

Awesome!!!

for a bump
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED


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