Joe Rogers (1974-2019)

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inorganic8
Posts: 50
Joined: Mon Feb 27, 2017 6:13 pm

Joe Rogers (1974-2019)

Postby inorganic8 » Wed Oct 23, 2019 1:15 pm

I lost my beloved husband of 21 years this June. You were all here with me at the start, whether you realize it or not. Thank you for your support and friendship.

My Joe was a big Dr. Who fan, so I have his ashes in a ceramic Tardis. Sure, it was supposed to be a cookie jar, but it works and the cookie facet is appropriate as well.

He was on two clinical trails in the last six months of his life and when I get the energy, I will post some details. I think he had a lot of experience that will benefit others in the future and I know he would want to help in any way he could.

For those of you still fighting and care-giving, I know you're exhausted. You are in my thoughts/prayers. Please keep me in yours.

-Kim
Wife to DH with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17
Folfiri 6/14/17
Nov. scan - disease progression
1/24/18 15-hour HIPEC surgery.
June 2018 It's back, starting Stivarga
Aug. 2018 stopping Stivarga
Sep. 2018 clinical trial of Keytruda and ibrutanib
Dec. 2018 disease progression, stopped trial
Jan. 2019 small bowel obstruction and surgery
Mar. 2019 clinical trial TAK-164
May 2019 deteriorating rapidly
June 12, 2019 At Peace

Claudine
Posts: 184
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Joe Rogers (1974-2019)

Postby Claudine » Wed Oct 23, 2019 1:47 pm

All my condolences, Kim. Those must be hard days for you. Thank you for still visiting the forum and offering to share any insight you've got on this dreadful disease.
XXXXXXXXXXXXXXXX

Claudine
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now 6.9
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Joe Rogers (1974-2019)

Postby stu » Wed Oct 23, 2019 1:55 pm

Just sending my love and support as you find a way forward from such a loss. Really sorry to hear that .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Gravelyguy
Posts: 261
Joined: Thu Jul 05, 2018 6:03 pm

Re: Joe Rogers (1974-2019)

Postby Gravelyguy » Wed Oct 23, 2019 2:00 pm

Kim,

I am so sorry for your loss. I have tears as I type. I hate this disease but am thankful for all the brave souls like your husband who are willing to do these trials to learn more on how to fight this.

Praying for you in these tough times.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Brearmstrong
Posts: 89
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Joe Rogers (1974-2019)

Postby Brearmstrong » Wed Oct 23, 2019 2:07 pm

Kim,

I'm so sorry to hear of your husband, Joe and his passing. I just wanted to reach out and say that we will all be thinking of you and hoping you can find some peace in the days to come. I wanted to reach out to say that I was diagnosed on the exact same date as your husband and I'm also KRAS and MSS. I will continue to fight each day in his honor.

-Much love

Brenda
45 F Jan 17 2 sons
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT Jul 2017 lung 4mm, clean CT oct 17, CEA 3.4, nov 17 8.1. May 18 2.3,1.0,1.3, 1.3, 1.0, 2.3, 2.2, 2.1,2.2,1.6
Oct 2017 clean CT
Nov 17 PET para aortic nodes Stage IV
Folfori w/avastin Dec 17 CEA 7.1
May 18- surgery to remove nodes- 5 positive xeloda continues
Aug 18-CT NED Clear CT's Nov 18, Feb 19, May 19, Aug 19,Nov19

Siti
Posts: 103
Joined: Thu Aug 01, 2019 10:58 am

Re: Joe Rogers (1974-2019)

Postby Siti » Wed Oct 23, 2019 2:16 pm

I am so sorry for your loss. I hate this disease and it’s so unfair in every way. I often question why bad things happen to good people. Sending you strength and big hugs!
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

User avatar
CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: Joe Rogers (1974-2019)

Postby CRguy » Wed Oct 23, 2019 11:17 pm

inorganic8 wrote:He was on two clinical trails in the last six months of his life and when I get the energy, I will post some details. I think he had a lot of experience that will benefit others in the future and I know he would want to help in any way he could.

For those of you still fighting and care-giving, I know you're exhausted. You are in my thoughts/prayers. Please keep me in yours.

-Kim

Sending Love Peace and Harmony to you Kim.
My sincere condolences to you and your family, for your loss.

What you have written above, embodies what this forum is about.
Thank you for continuing to be an important part of that, and please,
when you are ready, share that positive energy forward.

Holding you in the light my friend
you are in our prayers

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Joe Rogers (1974-2019)

Postby fumaros » Thu Oct 24, 2019 8:13 am

My deepest condolences and thoughts to you and your family.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Deb m
Posts: 518
Joined: Tue Jan 14, 2014 10:08 am

Re: Joe Rogers (1974-2019)

Postby Deb m » Thu Oct 24, 2019 8:35 am

Very sorry for your loss. Will keep you both in my rosary.

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Joe Rogers (1974-2019)

Postby Punky44 » Thu Oct 24, 2019 12:05 pm

So sorry for your loss. You’ll be in my prayers.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
GrouseMan
Posts: 823
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Joe Rogers (1974-2019)

Postby GrouseMan » Thu Oct 24, 2019 1:37 pm

Sorry for you loss. I like the Dr Who tribute in the Tardis cookie jar! I've still not found an appropriate container for my wife's ashes yet. They are still in the plastic box I received them in. You rock! I am sure he is pleased. I would be interested in hearing about the trials. Although I have lost my wife to colon cancer too, I still try and participate here as well!

Peace be with you!

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017


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