A journey of a thousand miles must begin with a single step.

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CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

A journey of a thousand miles must begin with a single step.

Postby CRguy » Wed Oct 23, 2019 1:20 am

A journey of a thousand miles must begin with a single step.
to paraphrase Lao Tzu from Tao Te Ching

Every Journey of 10,000 miles ... also
begins with a single step


or every Journey of 10,000 posts …
Begins HERE.

A few years ago this forum was watching as BrownBagger (Eric) was riding to achieve his goal of 10,000 miles
riding his bike … AFTER diagnosis ( he actually hit 10,477 miles )
BUTT … 10,000 MILES after diagnosis ?

WORD !!!!!

SO with this, my own 10,000’th post onto the ColonTalk forum
I salute you Eric, my friend

I salute ALL of my friends here

dealing with
struggling with
surviving with
thriving with
living with
frustrated with
angry with
fighting with

everything we deal … WITH

SCREW YOU CANCER

we are DONE WITH … YOU !

Here’s to the next 10,000 miles
the next 10,000 steps
the next 10,000 posts

we WILL take them together

we are Colon Clubbers
WE C TALK !!!! together

Take the next step
here
together

Love, Peace and Harmony
On the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Jacques
Posts: 579
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: A journey of a thousand miles must begin with a single step.

Postby Jacques » Wed Oct 23, 2019 7:43 am

Image
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CRguy -

Thank you so much for your 10,000 posts! Your contributions here have been priceless!

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MariaMaria
Posts: 36
Joined: Tue Sep 08, 2009 1:03 am

Re: A journey of a thousand miles must begin with a single step.

Postby MariaMaria » Wed Oct 23, 2019 9:31 am

You seriously rock!

Claudine
Posts: 399
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: A journey of a thousand miles must begin with a single step.

Postby Claudine » Wed Oct 23, 2019 9:39 am

Steps, stumbles, crawling, it doesn't matter it's moving forward! Thank you CR Guy your post made me smile big time this morning :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: A journey of a thousand miles must begin with a single step.

Postby teachpdx » Wed Oct 23, 2019 4:28 pm

Thanks CRguy - you rock! Thanks for being a memory keeper.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Gravelyguy
Posts: 319
Joined: Thu Jul 05, 2018 6:03 pm

Re: A journey of a thousand miles must begin with a single step.

Postby Gravelyguy » Wed Oct 23, 2019 4:41 pm

A truly awesome 10,000th post!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

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SilverWedding
Posts: 71
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: A journey of a thousand miles must begin with a single step.

Postby SilverWedding » Wed Oct 23, 2019 9:37 pm

Our step today was the port implant. Hit me hard, emotionally. Just really so much.
DH, 56, Sigmoid & rectum
Adenocarcinoma 2cm
 G2: Moderately differentiated
T3N2aM0
Stage IIIb
LN 6/22
5/19 Baseline CEA value - 18.9
Lymphovascular invasion (LVI): present
Perineural invasion (PNI): not identified
Surgical margins: proximal -negative; distal - negative 1.5cm; circumferential - negative 1mm)
MSI status: Waiting‬
Lynch status: ?
KRAS/BRAF: ?
Open Restorative Proctectomy, J-Pouch Coloanal Anastomosis, Loop Ileo w/Appendectomy
Neo-adjuvant Xeloda/radiation
Adjuvant Chemo: to begin 11/19

Rock_Robster
Posts: 517
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: A journey of a thousand miles must begin with a single step.

Postby Rock_Robster » Wed Oct 23, 2019 10:38 pm

CRGuy congrats! Thanks for everything you do for this group too.

It’s funny you post this - 2 days ago I was thinking “gee I wonder how many posts CRGuy has made?”, and I had a look and it was 9999. I assumed this was just the counter maxing out, but nope 8)
38M Australia
10/2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1
11/18 FOLFOX x6
3/19 Liver resect
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resect
02/20 Ileo reversed
03/20 NED (PET+MRI)
06/20 NED (CT+MRI)
07/20 Clear scope
09/20 NED (PET)

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CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

Re: A journey of a thousand miles must begin with a single step.

Postby CRguy » Wed Oct 23, 2019 11:43 pm

Luvin' the support and the graphics ! :mrgreen:

BUTT seriously the 10K mark kind of snuck up on me

YEAH ..... :oops: I guess I do kind of talk a lot here :shock:

BUTT worth it just to be able to connect with all the homies here,
I am blessed to be part of this group.

Harmony All
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

Re: A journey of a thousand miles must begin with a single step.

Postby paula » Sat Oct 26, 2019 4:35 pm

CR guy!!! you are here and still steppin'!

thank you for hanging in for all of us and for yourself...it's been awhile.
12 years for me.

I had a new primary lung spot that was resected two and a half years ago - it had been "watched" for many years and finally changed to malignant - but no recurrence so far.

As for the colon cancer, I've been NED now for 10 years after liver resection - 12 altogether from first diagnosis.

Ironically, after fighting for my life all this time, like we all have done, I find out that my dear spouse checked out emotionally 12 years ago. Seems cancer sucks the air out of the room (his words) so he's been looking for my replacement all along, betraying but keeping his image as a good guy intact. And I had no idea. Not an inkling. Just found out. I'm sure this happens to many good people. Long time ago, I learned not to feel especially sorry for myself. "it is what it is."

Maybe the important thing was I believed he was my partner, and that belief helped me heal. Now I will believe in myself by myself.

Anyway thank you again for all you have shared with the brave beautiful folks here. Love you all.
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

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CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

Re: A journey of a thousand miles must begin with a single step.

Postby CRguy » Sat Oct 26, 2019 11:23 pm

HEY, Hey ....Paula
we've been waiting for you
just to tell us
about all you've been through

keeping our memories
alive through the years
Hey Paula, you KNOW
we're all HERE...

.... For you love,
just for you


You don't know how many of the old time chats, PM's, posts, sayings, homies & memories I feel flooding back
just to read you posting again. The forum was a very different place in 2010 when you got your port-a-puck

Yes sista' I am still here kickin' BUTT and takin' names :mrgreen:
... as are YOU !

Now I will believe in myself by myself.

BUTT .... you are not alone
we are here with you and for you

Love Peace and Harmony
ALWAYS
on some kind of Journey
BUTT never alone

Namasté
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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paula
Posts: 450
Joined: Sat May 31, 2008 10:20 am

Re: A journey of a thousand miles must begin with a single step.

Postby paula » Sun Oct 27, 2019 9:01 am

Thank you, crGuy. never far from my heart. don't know how I could have made it without you and all the precious people on this forum. There is hope and healing. I made it to see 2 grandbabies born in the last 3 years. Life is still sweet and we are strong. Yes, full of goodbyes, but also hellos. Hugs to all.
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today

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GreenLakeGirl
Posts: 772
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: A journey of a thousand miles must begin with a single step.

Postby GreenLakeGirl » Sun Oct 27, 2019 4:39 pm

CR, you are a treasure. 10K is no small feat! Thanks for keeping the forum conversations flowing.
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

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CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

Re: A journey of a thousand miles must begin with a single step.

Postby CRguy » Sun Oct 27, 2019 9:00 pm

Wow GLG !!!!!
As I told Paula ... her post just stirred up some memories, from a time when the forum was kind of a different place.

I still recall when you, SBL and the CR's hooked up for pizza and calzones in the Pacific NorthWET
and sent some pix down to jmarie :mrgreen: :!:

I love hearing from all the homies from back then, even if they don't always post regularly, it still shows
WE ARE CONNECTED
and it shows the forum that WE ARE STILL HERE
and we definitely have BEEN THERE ... done that.

Love Peace and Harmony sista'
don't be no stranger around here
ya' hear
:mrgreen:

I-Fives homie
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Koreysue
Posts: 153
Joined: Mon Apr 30, 2018 2:36 pm

Re: A journey of a thousand miles must begin with a single step.

Postby Koreysue » Mon Oct 28, 2019 2:09 am

We appreciate you!
Wow! 10,000 :D
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8


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