Page 3 of 3

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 12:15 pm
by Punky44
Thanks for the prayers guys—I would have posted an update yesterday but was waiting for the report to be published to the portal.

So here’s what the PET said:


Left lower lobe pulmonary consolidation has essentially resolved, compatible
with pneumonia. A left upper lobe part solid nodule is decreased with trace FDG
uptake above adjacent pulmonary parenchyma, series 7 image 73. Persistent
emphysematous changes in the bilateral lungs. A right lower lobe partially
cavitary pulmonary nodule is likely stable allowing for differences in
respiratory effort. Additional smaller, tiny bilateral pulmonary nodules are not
significantly changed. No new or increasing pulmonary nodules. Stable calcified
right calcified pulmonary granuloma.

Noncontrast CT demonstrates calcified atherosclerotic plaque, calcified
mediastinal and hilar lymph nodes compatible with prior granulomatous infection,
emphysema.

IMPRESSION:
1. Resolved left lower lobe pneumonia.
2. Stable tiny bilateral pulmonary nodules without significant FDG uptake,
though possibly below PET resolution.
3. No evident recurrence/metastasis.


So obviously the good news seems to be that much of the stuff seen a month ago has resolved, but this main spot that was of most concern is still there, although apparently smaller? The oncologist still said he wants ya back in 2 months for another CT to monitor this spot. I’m honestly not sure what to make of it. I know it’s borderline size to light up on a PET but wouldn’t the fact that it’s smaller be “proof” it’s benign? Or is the measurement variable between machines/radiologists so maybe it’s not really smaller but stable? And the fact that he wants us back in 2 months makes me feel like we aren’t in the clear and he thinks this is cancer. Ugh. We just aren’t sure how to feel or process this.

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 7:11 pm
by Trying
Im sorry about your stress. You are in my thoughts.

Nicole

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 7:45 pm
by kiwiinoz
Hi Punky,

Seems like pretty good news all around after reading this.
2. Stable tiny bilateral pulmonary nodules without significant FDG uptake,
though possibly below PET resolution.

3. No evident recurrence/metastasis.


Pulmonary nodes without significant FDG uptake & no evidence of recurrence. Don't look for problems that aren't there. Enjoy the good times now and deal with any issues that "may" arise when they arise.
I spent too much of my time worrying about possible recurrance that I spent several years of my life not enjoying my life and I certainly wish I had done differently now. You can perhaps help your Mum by letting her enjoy the "now" instead of letting her worry about the future. I get it that you are scared, but keep that inside and just be mindful that they are your fears.

If the doctor is not worried, then I don't see that you have a lot to worry about until something bites you in the bum, which it may never do.

Kiwi

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 8:47 pm
by CF_69
They always leave some ‘wiggle room’ when describing these things. I mean they are never definite.

Looks like a good scan to me. I know it’s next to impossible, but try to relax as much as you can.

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 9:43 pm
by AmyG
Thanks for the update, I'd call it good news!

Re: Freaking out of my mind...CEA climb and specks on lungs

Posted: Wed Nov 27, 2019 11:07 pm
by Punky44
Thank you all. Really trying to not dwell on it during the holidays and just pray it ends up being nothing but in the meantime not let it ruin the “now”. Easier said than done for sure but I’m trying.