Freaking out of my mind...CEA climb and specks on lungs

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Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby Punky44 » Wed Nov 27, 2019 12:15 pm

Thanks for the prayers guys—I would have posted an update yesterday but was waiting for the report to be published to the portal.

So here’s what the PET said:


Left lower lobe pulmonary consolidation has essentially resolved, compatible
with pneumonia. A left upper lobe part solid nodule is decreased with trace FDG
uptake above adjacent pulmonary parenchyma, series 7 image 73. Persistent
emphysematous changes in the bilateral lungs. A right lower lobe partially
cavitary pulmonary nodule is likely stable allowing for differences in
respiratory effort. Additional smaller, tiny bilateral pulmonary nodules are not
significantly changed. No new or increasing pulmonary nodules. Stable calcified
right calcified pulmonary granuloma.

Noncontrast CT demonstrates calcified atherosclerotic plaque, calcified
mediastinal and hilar lymph nodes compatible with prior granulomatous infection,
emphysema.

IMPRESSION:
1. Resolved left lower lobe pneumonia.
2. Stable tiny bilateral pulmonary nodules without significant FDG uptake,
though possibly below PET resolution.
3. No evident recurrence/metastasis.


So obviously the good news seems to be that much of the stuff seen a month ago has resolved, but this main spot that was of most concern is still there, although apparently smaller? The oncologist still said he wants ya back in 2 months for another CT to monitor this spot. I’m honestly not sure what to make of it. I know it’s borderline size to light up on a PET but wouldn’t the fact that it’s smaller be “proof” it’s benign? Or is the measurement variable between machines/radiologists so maybe it’s not really smaller but stable? And the fact that he wants us back in 2 months makes me feel like we aren’t in the clear and he thinks this is cancer. Ugh. We just aren’t sure how to feel or process this.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Trying
Posts: 185
Joined: Sun May 13, 2018 10:11 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby Trying » Wed Nov 27, 2019 7:11 pm

Im sorry about your stress. You are in my thoughts.

Nicole
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

kiwiinoz
Posts: 1134
Joined: Thu Jan 03, 2013 11:44 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby kiwiinoz » Wed Nov 27, 2019 7:45 pm

Hi Punky,

Seems like pretty good news all around after reading this.
2. Stable tiny bilateral pulmonary nodules without significant FDG uptake,
though possibly below PET resolution.

3. No evident recurrence/metastasis.


Pulmonary nodes without significant FDG uptake & no evidence of recurrence. Don't look for problems that aren't there. Enjoy the good times now and deal with any issues that "may" arise when they arise.
I spent too much of my time worrying about possible recurrance that I spent several years of my life not enjoying my life and I certainly wish I had done differently now. You can perhaps help your Mum by letting her enjoy the "now" instead of letting her worry about the future. I get it that you are scared, but keep that inside and just be mindful that they are your fears.

If the doctor is not worried, then I don't see that you have a lot to worry about until something bites you in the bum, which it may never do.

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

CF_69
Posts: 90
Joined: Sat Dec 22, 2018 9:44 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby CF_69 » Wed Nov 27, 2019 8:47 pm

They always leave some ‘wiggle room’ when describing these things. I mean they are never definite.

Looks like a good scan to me. I know it’s next to impossible, but try to relax as much as you can.
47 year old male
Distal sigmoid near rectosigmoid junction adjacent to upper rectum
Adenocarcinoma
2.8 x 1.8 x 3.5 cm
G2
T3N0M0 after pathology
CEA:
Dec 2018 - 1.9
September 2019 - 2.5
Xeloda / radiation x 25
Laparoscopic LAR April 2019
0 of 12 nodes
Stage 2A
4 cycles of adjuvant Xeloda
MRI on liver for 2mm hypodensity not suspicious.
Clear CT - September 2019

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby AmyG » Wed Nov 27, 2019 9:43 pm

Thanks for the update, I'd call it good news!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Freaking out of my mind...CEA climb and specks on lungs

Postby Punky44 » Wed Nov 27, 2019 11:07 pm

Thank you all. Really trying to not dwell on it during the holidays and just pray it ends up being nothing but in the meantime not let it ruin the “now”. Easier said than done for sure but I’m trying.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.


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