My mom went in today for her 6 month check and got a CEA draw and CT scan....
Her CEA rose from 1.9 to 2.6. I saw this in the portal even before the meeting and it freaked me out. I know it’s still “within normal range” but it just seems like such a significant jump given that her other readings were 2.1 and 1.9.
I held my breath the rest of the day but we just got the results of the CT and my heart sank—they said they found multiple “specks” in her lungs and said it “could” be inflammation (she’s been sick with a minor cold/cough) but “as a precaution” they want her back in January for another CEA and a PET scan and to “try not to stress” in the meantime.
Well I AM STRESSING because this basically screams recurrence to me and I feel like it’s like saying “Yeah we think your cancer is back but we don’t have the technology to prove it right now so let’s let it grow for three months and then we will be able to prove it.”
I literally am crumbling right now—what can we do????? Are we seriously just supposed to twiddle our thumbs for 90 days until we get devestating news?
Please help me understand what we can do at this point. “Worried” “stressed” and “freaking out” is an understatement for how I am feeling right now. I prayed so hard to just have a stable number and a “clear” CT and now this.