7 1/2 years post Stage IV liver resection

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
dianetavegia
Posts: 2719
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

7 1/2 years post Stage IV liver resection

Postby dianetavegia » Mon Oct 21, 2019 2:49 pm

I finally got my CEA results and it remains well within normal range 7 1/2 years after 80% of my liver was removed (Stage IVa) and almost 11 years since my original diagnosis (Stage III).

I see the oncologist for my final time tomorrow morning and will be discharged as 'cured'.

After the first year, the mortality excess of resected patients, in comparison to the general population, starts to decline until it approaches zero 6 years after surgery. After 6.48 years, patients alive without tumor recurrence can be considered cured with 99 % certainty.
https://www.ncbi.nlm.nih.gov/pubmed/25398280

I've prayed and been prayed over by so many of you and my local church and friends/ family these last years and I wanted to thank you all and lift up in memory many who prayed for me who didn't make it. Bev G's phone calls when I was having anxiety attacks come to mind.

I also wanted to offer HOPE. I'll be 69 in December and was diagnosed at 58. I still believe in miracles!

I can't lose the weight I gained after my HR *with NO chemo after liver surgery, no matter how hard I try. I'm talking 25 lbs. I am, tho, doing background acting 5 days most weeks and have had some featured parts in several movies and TV shows. If they have not been released, I can't openly name them. It's fun and it's sometimes hard work!

Diane Tavegia
Stage III cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage PET = 1.5cm liver met. HR 4/11/12 No chemo

11 years since dx and 7 1/2 years post liver resection.
Pronounced CURED

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: 7 1/2 years post Stage IV liver resection

Postby stu » Mon Oct 21, 2019 4:04 pm

That’s great news . So glad your out having fun .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: 7 1/2 years post Stage IV liver resection

Postby Punky44 » Mon Oct 21, 2019 6:18 pm

Such awesome news!!

My mom is scheduled for her CEA and CT check tomorrow and I am praying for clear results so we can start down our journey of years and years of NEDville. Please keep us in your thoughts!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Detox
Posts: 50
Joined: Fri Apr 28, 2017 5:27 pm

Re: 7 1/2 years post Stage IV liver resection

Postby Detox » Mon Oct 21, 2019 6:44 pm

Congrats!

But always remember to take care of yourself, even after you've reached cure status.

And keep getting annual CEA tests. Can never be too safe...

rachelfromnyc
Posts: 22
Joined: Fri Oct 04, 2019 11:32 am

Re: 7 1/2 years post Stage IV liver resection

Postby rachelfromnyc » Mon Oct 21, 2019 9:09 pm

Hi Diane,

Thanks for sharing. I'm only a few months into my own stage IV diagnosis nightmare and these are the types of experiences I seek out and love hearing about. I'll be looking out for you on the big screen :)

Rachel
37 at dx May '19, one month after my bday
5/19: 3.4 cm mass in transverse colon, enlarged distant lymph nodes, innumerable lung nodules; CEA 13.2 ng/mL
5/19: FNA of supraclavicular lymph nodes positive for disease
6/19 to 9/19: 6 cycles of FOLFOX; CEA 3.9 ng/mL
7/19: CEA 4.3 ng/ml
10/19: CT scan shows primary tumor stable, lymph nodes shrinking and disease progression in liver; CEA 4.8 ng/mL
10/19: Start FOLFIRI with Avastin, planned 6 rounds

michelle c
Posts: 1885
Joined: Wed Dec 02, 2009 3:58 am

Re: 7 1/2 years post Stage IV liver resection

Postby michelle c » Mon Oct 21, 2019 9:52 pm

Oh wow Diane, I can’t believe it’s been that long....time certainly does fly. I’m so glad you’re doing well. It really is a roller coaster ride and sometimes we just don’t know where the next bump or turn will be. But then we also go up and never go back down that scary drop.

I have just been to my GP, got my referral to have my tumor markers done as well as general blood tests and an ultrasound. She talked about me maybe having a full hysterectomy sometime in the future.

It’s been over ten years since I was diagnosed with stage III CC. In some ways it seems like yesterday. I think I still suffer from anxiety due to my diagnoses.

I miss Bev....still can’t believe she’s gone. She was so sensible, knowledgeable and had a wonderful calming manner. She suffered with anxiety too but hers decreased with her diagnoses whereby mine heightened.

Wishing you the best always, Diane.
Michelle xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Koreysue
Posts: 130
Joined: Mon Apr 30, 2018 2:36 pm

Re: 7 1/2 years post Stage IV liver resection

Postby Koreysue » Mon Oct 21, 2019 10:04 pm

Diane! That is incredible news!
So very happy for you. You have definitely been an encouragement to me. I’d love to know which shows you are on once you are allowed to. That sounds really fun :D
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2

tater
Posts: 120
Joined: Wed Jul 19, 2017 5:53 pm

Re: 7 1/2 years post Stage IV liver resection

Postby tater » Tue Oct 22, 2019 8:24 am

awesome news. Good luck and thanks for sharing hope.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

Siti
Posts: 103
Joined: Thu Aug 01, 2019 10:58 am

Re: 7 1/2 years post Stage IV liver resection

Postby Siti » Wed Oct 23, 2019 2:25 pm

I am so happy for you that it brought me to tears. Thank you for coming back to give hope and encouragement to all patients here, especially those Stage 4 that have been told their disease is incurable. You’re a role model!
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

jsbsf
Posts: 22
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: 7 1/2 years post Stage IV liver resection

Postby jsbsf » Wed Oct 23, 2019 2:45 pm

Today makes 2 months since my world was turned upside down. Thank you for sharing the encouraging news. I look forward to hearing more stories like yours.
DH 61
2019
8/23 Colonoscopy, 5+cm mass. Baseline CEA:4.1
8/26 CT ~1cm liver met?
9/6 PET: liver spot
9/16 MSS. MRI: 2 liver mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX
10/4 Larger liver met ~3.7cm (raised concern), colon tumor stable.
CEA: 10/13,12.5;10/27,4.7;11/10,3.3; 11/24,3.1;12/8,3.3
11/5 both liver mets almost 2/3 smaller.

mariane
Posts: 676
Joined: Sun Sep 13, 2015 6:16 pm

Re: 7 1/2 years post Stage IV liver resection

Postby mariane » Thu Oct 24, 2019 7:23 pm

Congratulations Diane! I am so very happy. Enjoy beautiful Southern fall.
mom of now 10 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot], MetastaticEquilibria, Murb123 and 22 guests