My sister has been in the regional medical center hospital (Oregon) for over a week. Little progress to control nausea and vomiting. Can't keep food or oral meds down going on 20 days. IV dilaudid because she vomits the morphine pill back up, and they can't re-give.
5FU LV completed 2nd round, postponed 3rd & hospitalized due to weight loss, nausea, not eating at 9 days after 2nd round
10/11/19 CT scan: 5FU LV not effective--no decrease, some reconfiguration of cancer.
Oncologist said pause chemo meds until regain weight and strength.
10/15/19 Still hospitalized. Started TPN nutrients. 2 seizures unknown cause, moved to ICU floor. CT: no brain cancer. Added anti seizure, and anti stroke meds.
10/16/19 Still high BP-put on meds, under control. High HR 128bpm! Moving to Cardiac floor. STILL NAUSEOUS, suppository and IV meds help but not relieve. Hospital says they've tried all the nausea meds. Can't find a mix or schedule that alleviates. Can't keep food or oral meds down.
I'm writing to get your perspective on this mess! Is the hospital inadequate to serve her? Does chemo leave this intense and lasting nausea normally? Is the nausea from something else? She's a patient of one of the largest cancer centers in our state. But is this enough?
I figure you've all been down this road, maybe you all can offer some insight on what to do next?!?
Thank you tons!!
My SIS: 40 mom of kids 14, 12, 12, 10.
Dx: 8/19 CRC trans colon & rectum
mets: liver ?", 1 lung, ovary
BMI 16 !!
mutated PIK3CA, ARID1A, IDH1
No surgeries or radiation rec.
5FU LV not effective
Hospitalized, TPN nutrients, HR 128!