heiders33 wrote:Update: It turns out that it might be a recurrence at the original site (anastomosis). I know people here have experienced this before, but I'm wondering what options you were presented. I have a MRI on Sunday to confirm and a meeting with the surgeon next Thursday. I am also having an MRI of the liver because there was slight uptake there, although she thinks that's just inflammation.
Also, it's baffling that this supposed mass wasn't seen in my most recent colonoscopy. I know my surgical site is tricky and they had to perform a partial colonoscopy, endoscopy, and CT colonography in order to see the whole colon. So perhaps between the three they couldn't see clearly right at the site?
heiders33 wrote:The original site is actually the recto-sigmoid area, and it's very scar-tissued due to radiation. Not sure how easy it will be to surgically remove.
@NHMike, they don't know the size because it was a PET scan and it only shows uptake. I think she said the uptake was a bit higher than my PET a year ago, but I can't remember.
zx10guy wrote:Do you have the actual radiology report? If not, you need to get it. It'll tell you what the uptake value is of that spot called SUV. If you don't have the previous PET report, I would also get that too.
heiders33 wrote:zx10guy wrote:Do you have the actual radiology report? If not, you need to get it. It'll tell you what the uptake value is of that spot called SUV. If you don't have the previous PET report, I would also get that too.
Yes, I have the actual report. I 'm not brave enough to look at the actual scans though. When I switched to MSK, I gave them copies of CD's of all my most recent scans - this was a requirement. My new scans are in their system along with old. Yesterday she checked my previous PET scan right on the spot. The uptake in this "soft tissue mass" was 8.6, up from 2.5 on the prior scan. There was also an SUV of 5.3 around the ileocecal valve in my most recent scan.
At MSK they have better scan machines than the place I went to previously. She said that my previous PET scan was a bad image.
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