heiders33 wrote:The original site is actually the recto-sigmoid area, and it's very scar-tissued due to radiation. Not sure how easy it will be to surgically remove.
@NHMike, they don't know the size because it was a PET scan and it only shows uptake. I think she said the uptake was a bit higher than my PET a year ago, but I can't remember.
Do you have the actual radiology report? If not, you need to get it. It'll tell you what the uptake value is of that spot called SUV. If you don't have the previous PET report, I would also get that too.
The common guidance is to always get copies of your scan images on CD to take with you. You should also ask for those. Per my other thread about my CEA situation, I was able to calm myself a little while waiting for the experts to review my scan images by looking at the images myself on CD. Once someone points out what you're looking at with a PET image and what is a bad/suspicious spot, it's very easy for a lay person to do a gross examination of the images to see something wrong. The CDs I get from the scanning facility includes all the software you need to load up the images. Using a mouse makes it easy to scroll through the image slices. Any spot on the scan, I can click on it and the software will tell me the SUV of that location. Since I have copies of pretty much all the scans I had done since being diagnosed, I was able to put my recent PET scan images next to the last one I had done in 2017 to see if there were any differences. This is also what radiologists will do when reviewing your scan. If you use the same facility for all of your scans, it will be easy for them to make comparisons. If you are starting anew with this facility, it is always a good idea to provide them with your scans from the previous facility for them to do a comparison. I stopped using the scanning facilities associated with my local hospital when I switched oncologists. Since the new facility had no previous scans for me, at my first a scan appointment, I brought CDs of my previous scans for the admin to load up into their system so the radiologist could use them for a comparison.