Scared of surgery in need of wisdom...

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Mohrfamily
Posts: 170
Joined: Tue May 22, 2018 4:04 pm

Re: Scared of surgery in need of wisdom...

Postby Mohrfamily » Wed Oct 09, 2019 4:48 am

CT scan 9/25 help me interpret this:

Conventional branching of left and right hepatic arteries from proper hepatic artery. No accessory hepatic arteries or anatomic variants.
Heterogeneous nodular liver with multiple LOW DENSITY hepatic lesions.

I mean i know its good news but no one really explained the medical mumbo jumbo.
DH dx officially stage IV with liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection

Mohrfamily
Posts: 170
Joined: Tue May 22, 2018 4:04 pm

Re: Scared of surgery in need of wisdom...

Postby Mohrfamily » Wed Oct 16, 2019 4:44 am

2 weeks out from surgery, cue the Ensure Enlive regimen. Hubby is turning his nose up at the smell, which honestly doesn't smell that bad but then again I drink a slim fast at lunch for work.

Upon "Ensure" day he finally sat down to go through the hospital book and GI surgery prep, pre, and post booklet i think made him more nervous.
DH dx officially stage IV with liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection

Pyro
Posts: 297
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Scared of surgery in need of wisdom...

Postby Pyro » Thu Oct 17, 2019 11:19 pm

The good lord has seen to it that I’ve forgotten most of the worst parts of my surgeries and recovery, like no memory at all. My wife counts this as a blessing, I think she might be correct. As far as the jungle gym, I used to be one as well but now I’m a bit too fragile, too many things on my body that cannot be disturbed. Everyone is different though, good luck!
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Rock_Robster
Posts: 343
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Scared of surgery in need of wisdom...

Postby Rock_Robster » Fri Oct 18, 2019 2:30 am

Hi Mohrfamily, I know I’m probably a bit weird in this regard, but I just want to give an alternative view for what it’s worth. I’ve been at this thing for just on a year now, and surgeries are easily my preferred part. I’ve had a liver resection, a low anterior resection with ileostomy, and am lining up for my second (and hopefully final!) liver resection and stoma reversal in a couple of months.

Now when I say “preferred” I don’t mean that I enjoy them, but compared to chemo or radiotherapy they have been a breeze. I have also been very fortunate to have had quick recoveries without complications, which I know not everyone does (and I don’t want to be insensitive to this).

The most important thing for me is that if all goes well - you have surgery, it hurts a bit, they give you good painkillers, you have lots of nice people taking care of you, then every day is a little bit better than the last. Every day you get more strength, more energy, a bit less pain, a bit more mobility. Yes there’s definitely tough periods, but within a couple of weeks of both my procedures I felt pretty human again. You also have a LOT of say over your own recovery efforts and can really feel empowered to heal well. I’ve made a minor study of this now and always happy to share notes :-). Compared to the unpredictable rollercoaster of chemo, or the tedious weeks of radiation, I’ll take surgery anyday. And most importantly - it removes a HUGE proportion of cancer in one fell swoop! As they say, there’s no cancer that can resist cold steel. And as others have said, whenever I get nervous, I just remind myself how grateful and fortunate I am to have a surgical option (twice...).

Anyway, call me mad (perhaps we all are a little down here), but I just wanted to put this out there. Best of luck to you guys, I’m sure you’ve got this.

Rob
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

boxhill
Posts: 360
Joined: Fri Apr 06, 2018 11:40 am

Re: Scared of surgery in need of wisdom...

Postby boxhill » Sat Oct 19, 2019 6:51 pm

I agree with Rob. I'm having a lot more pain from Keytruda side effects than I did from surgery. And when I had surgery, I was able to take good drugs to actually kill the pain, whereas now I cannot because there is no obvious and expected course of improvement in the base condition creating the pain. I can't stay on prednisone, either. Intervention such as steroid injection in the joint has not worked beyond a couple of days.

Give me surgery. :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable


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