Treatment at Mayo Clinic MN

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 19
Joined: Mon Sep 30, 2019 4:03 pm

Treatment at Mayo Clinic MN

Postby Suniva » Wed Oct 02, 2019 2:52 pm

Hi all,
Is there any one doing treatment at Mayo clinic MN?
DT 41yrs 10/18 on 3C, and small nod r/l lungs
11 lap surg
12/1805/2019 CAPOX total 8cyc (inc and dec tumor)
09 thoracotomy at right lung took two nodules, still left at left lung.metastatic to lung
10-Started CAPOX again
10/31/19-2nd cycle Allergic to OX taking CAP oral chemo alone for 1 cycle, CT scan showed left nodule inc. from 5to6mm
12/19 ct scan ndoc visit 7mm. Doc want to do 3 cycles of CAP
2/18 pet n ultrasound endo confirmed metastatic to perirectal 4mm
3/16 CT new nods at r/l lungs, inc pelvis

Posts: 363
Joined: Thu Jul 05, 2018 6:03 pm

Re: Treatment at Mayo Clinic MN

Postby Gravelyguy » Fri Oct 04, 2019 9:14 am

Hi Suniva,

I sort of had treatments at Mayo in Rochester. They did my radiation and surgeries and guided my chemo which I had done locally. I am currently in surveillance and that is also being done at Mayo. I think Punky44's mom is doing the same thing but is still doing adjuvant chemo.

Anything I can help with?

6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

Posts: 230
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: Treatment at Mayo Clinic MN

Postby Ehut » Fri Oct 04, 2019 10:13 pm

I was treated there in 2011-12 with surgery and radiation, and they consulted with my local oncologist for my chemo regimen. I had an extremely positive experience there and highly recommend them. My results speak for themselves.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 8+ years and counting!

Posts: 484
Joined: Mon Oct 01, 2018 4:29 pm

Re: Treatment at Mayo Clinic MN

Postby Punky44 » Sat Oct 05, 2019 1:09 am

Yep, my mom went there for her radiation treatment (because they offered proton beam therapy) and her surgery. She did neoadjuvant chemo locally but per their recommendation and then her current 6 month follow up CT scans are all done at Mayo under the care of their oncology team.

Mayo is A-mayo-zing. :)
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1
Latest update: 6/28/21: Clear CT with CEA 3.1 (attributed to emphysema)

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: roadrunner and 4 guests