Do you have experience with CareOncology.com?

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Peridot1
Posts: 4
Joined: Sat Aug 10, 2019 9:14 am

Do you have experience with CareOncology.com?

Postby Peridot1 » Tue Oct 01, 2019 2:26 pm

This company says it developed a multi-targeted adjunctive therapy for cancer. It repurposes drugs that are approved in other indications to be used to target and slow down growth of cancer, to work together in a complementary way against cancer and enhance the activity of standard of care treatments. Since FOLFOX and FOLFIRI failed to work for me, I am looking for other drugs and treatments to work with and help conventional (eg. chemo, radiation, surgery, etc.) or alternative (eg. diet, exercise, supplements) treatments. Greatly appreciate your insights/thoughts/experiences. Thank you.

boxhill
Posts: 355
Joined: Fri Apr 06, 2018 11:40 am

Re: Do you have experience with CareOncology.com?

Postby boxhill » Tue Oct 01, 2019 11:28 pm

I think that's the same thing another member, TinaFish, signed up with. They put her on a number of drugs that, combined with chemo, gave her violently bad diarrhea, amongst other things.

Honestly, I had the impression that they suggest a grab bag of drugs, each one addressing a theoretical way to attack cancer, whether or not they had been studied either separately or together for actual efficacy. But I am neither a scientist nor a doctor.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

Peridot1
Posts: 4
Joined: Sat Aug 10, 2019 9:14 am

Re: Do you have experience with CareOncology.com?

Postby Peridot1 » Wed Oct 02, 2019 11:08 am

Thank you, boxhill, for your reply with valuable information.

Eternal optimist
Posts: 20
Joined: Sun May 01, 2016 9:26 am

Re: Do you have experience with CareOncology.com?

Postby Eternal optimist » Wed Oct 02, 2019 8:27 pm

I have been on the care oncology protocol for just over 2 years, and against the odds became NED about 20 months ago. I started the regime after my second recurrence, I had little/no response to my first line chemo and was diagnosed with multiple mets, and I credit the Care Oncology protocol with helping me get to NED and keeping me there. I know a number of other people in the UK who use the protocol and have also had similar results.

I'm happy to answer questions about it, but tag me if you do as I don't come on the site often anymore
Diagnosed age 34 in Feb 2015, sigmoid tumour & PALNs
CapOx Mar-Oct 15
Resection of colon and PALNs Dec 15 -T3a N2 M1a
Xeloda Apr- Nov 16
Dec 16 - PALN recurrence, Radiotherapy
Aug 17 - FDG uptake in para aortic and retro peritoneal nodes, peritoneum, ovary plus small nodues on lungs. Only enlarged PALNs and small lung nodules visible on CT, but possible spine mets seen.
Sept 17 Folfiri and Cetuximab
April 18 NED
July 18 -surgery to examine what turned out to be a benign peritoneal inclusion cyst

mpbser
Posts: 927
Joined: Wed Apr 19, 2017 11:52 am

Re: Do you have experience with CareOncology.com?

Postby mpbser » Thu Oct 03, 2019 12:29 pm

Eternal optimist wrote:I have been on the care oncology protocol for just over 2 years, and against the odds became NED about 20 months ago.


That's really awesome. May I ask what treatments Care Oncology has prescribed you?
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

hawkowl
Posts: 122
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Do you have experience with CareOncology.com?

Postby hawkowl » Thu Oct 03, 2019 1:11 pm

If you are interested in hearing from a big number of people using the COC protocol and other repurposed drugs, I suggest joining the Facebook group “repurposed drugs for cancer”. I have been in this group for a few years and have learned a lot. The discussions
Are generally based on science and not speculation and many references are provided. Most of the members have CRC
Dx 12/2014 T3N2MX (iliac nodes) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

User avatar
Jacques
Posts: 519
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Do you have experience with CareOncology.com?

Postby Jacques » Fri Oct 04, 2019 3:29 am

mpbser wrote:...May I ask what treatments Care Oncology has prescribed you?

The standard treatment is a 4-drug cocktail mentioned in the post below. Doses of these 4 drugs are customized per patient. Please note that none of these drugs were approved originally for treating any kind of cancer.
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=62966&p=496016&p=495952#p495952

mpbser
Posts: 927
Joined: Wed Apr 19, 2017 11:52 am

Re: Do you have experience with CareOncology.com?

Postby mpbser » Fri Oct 04, 2019 7:10 am

Thanks, Jacques. Sounds very interesting but also not well supported by the establishment in the US.

I look forward to reading more about it here in the archives.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED


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