Finally some good news

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tminor5
Posts: 37
Joined: Wed Jun 13, 2018 11:46 am

Finally some good news

Postby tminor5 » Fri Sep 27, 2019 5:02 pm

Husband had his colostomy take down in March. The surgeon decided with all the scar tissue in there to give him a temp illeo and see how the connection went. Glad he went that way. We found out at the first procedure June 20 that the connection opening was only 1mm a normal colon is 30 mm. So we thought we would never get there. GI Dr said go ahead with hip replacement first so my husband could walk without a walker. He's now been going in for a Stigmoid Colon thing every 2 weeks since July 25. After a couple times of the GI Dr stretching the opening he finally decided the staples and such were causing the scar tissue (which means the opening would shrink between stretching) so took those out took a suture out. Finally looked better but still had minimal shrinking, for the size of his colon. Once he opened it enough he could get the scope to the other side and he found my husband colon is only 15mm. Except the last time 3 weeks ago he injected steroids into the scar tissue to keep it from growing. Finally it worked. It didn't shrink back, the scar tissue behaved. They didnt have to insert a stint for 6 weeks to try and keep it open longer. He's calling the surgeon to tell him they can schedule his illeo reversal. He does have to go back to the GI in 3 months to make sure everything looks ok and of course call the minute he thinks he might be getting a blockage (which would be shrinking/scar tissue). GI said hubby will pretty much need to be on a low fiber diet forever because of the size of his colon.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER bowel obstruction
5/26/18 Colonoscopy couldn't insert stint
5/27/18 Surgery removed 18", not seen on any near by organs, colostomy due to infection
6/25/18 1st FOLFOX (12 cycles)
11/26/18 Last chemo
12/17/18 Colonoscopy clear
3/29/19 Colostomy takedown (temp illeo because of scaring)
5/23/19 Scan (sm node lung believe scar tissue)
6/20-7/25-8/9-8/20-9/5-9/26 Colon stretch for illeo takedown
10/3/19 Scan (node same)
10/25/19 Ileo takedown

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Finally some good news

Postby Punky44 » Fri Sep 27, 2019 10:30 pm

Good news! Good luck on the future reversal!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
Rob in PA
Posts: 1998
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Finally some good news

Postby Rob in PA » Sat Sep 28, 2019 4:21 am

Terrific news! Good luck with the follow up, hope it behaves.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

DarknessEmbraced
Posts: 3381
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Finally some good news

Postby DarknessEmbraced » Sat Sep 28, 2019 10:42 am

Thar's wonderful news! :) I'm glad it helped him! I had the stretching done once after my colon resection surgery. It really helped.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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