The Colon Club

Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.

Rikimaroo wrote:Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.

I used two-piece ileostomy solutions. The advantage is that you can take the bag off and put another one on (though in practice I never did this) and you can burp the bag. I don't think that I've ever seen a one-piece ileostomy but I have read about them.

NHMike wrote:

Rikimaroo wrote:Lee do you use a stealth belt for your colostomy, or just leave it under your clothes? Also does the bag not come with it's own built in wafer? With the Ileo bag I never had to buy any wafer, just the barrier ring.

I used two-piece ileostomy solutions. The advantage is that you can take the bag off and put another one on (though in practice I never did this) and you can burp the bag. I don't think that I've ever seen a one-piece ileostomy but I have read about them.

I use a one-piece ileostomy (Coloplast Sensura Mio drainable); I actually think in a way it makes more sense for an ileo as the rate-determining factor on changes is when the wafer is close to failure, rather than when the bag is full (as it is drainable). To put it another way, I can’t imagine a scenario as an ileostomate where I need a new bag but the wafer/adhesive is still fine. Also I find the one-piece sits flatter without the additional ring seal, and it’s one less potential point of failure.

I also use a Stealth Belt which I find a HUGE benefit in terms of comfort and also discreetness.

Hey Rob,

Have you tried seeing a physical therapist? I wonder if they can help break up some of the scarring. Scarring has caused some pelvic pain for me, but PT has definitely helped. Might be worth it if you can find a pelvic specialist to work with.

P.s., thanks for the well wishes!

Phuong wrote:Hey Rob,

Have you tried seeing a physical therapist? I wonder if they can help break up some of the scarring. Scarring has caused some pelvic pain for me, but PT has definitely helped. Might be worth it if you can find a pelvic specialist to work with.

P.s., thanks for the well wishes!

Hey there Phuong,
I have not tried a PT yet, but have been considering it. I will be seeing a neurologist as soon as we can work our schedules out, then, if that doesn't work out, i believe i will talk to a PT . Hope all is well. Sorry i didn't respond sooner, I've been on walkabout for last several weeks

Rob