Hello to all my old friends on here, and welcome new friends to the club that no one really wants to belong to...butt we are sooo thankful that it is here!
Congrats Phuong on your new position within the Club....I hear the benefits are terrific
CRguy, as always, still offering up terrific advice and opinions to those in need on here (CRguy is a treasure trove of valuable insight)....and greatly appreciated from those who aren't so much on here anymore (me
It amazes me to see some of the new chemo drugs that are being mentioned, as well as procedures being performed.
As for me, I'm doing fairly well. My doctors and I are currently assessing my options for the apparently permanent rectal pain I am having from my LAR . I've been reading up on LAR Syndrome that one of my docs was telling me about and it appears that that is the issue I'm dealing with.
One option would be to go back to having a colostomy but I've already had 2 ileostomies and 1 colostomy so i've got some serious scar tissue remaining from those procedures and the doc said it could be a difficult surgery once they get in there due to the scarring.
I do have good days after my morning BM's are done and I get outside and enjoy life to the fullest, but it's those damn "flare-up" days as I call them, that keep me cooped up in the house on pain meds (low dose Percocet).
I'm wondering, does anyone else have LAR Syndrome symptoms and if so, how have you handled it? I don't want to up my percocet dose or switch to oxycontin if i can help it. I'm looking into medical marijuana but know of no one that has used it for my type of issues.
Anyhow, still kicking and loving life...just looking for a bit of that good ole Club input on this one