Clear colonoscopy

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DarknessEmbraced
Posts: 3399
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Clear colonoscopy

Postby DarknessEmbraced » Mon Sep 23, 2019 10:36 am

I had a colonoscopy this morning which was clear. I'm glad it was normal but I wish I knew why my digestive symptoms have been so much worse this month. My 5 year scans will be scheduled sometime this year.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10085
Joined: Sun Feb 10, 2008 6:00 pm

Re: Clear colonoscopy

Postby CRguy » Mon Sep 23, 2019 11:54 am

Good news on the scoping my friend.

One step at a time I am afraid :shock: SO...
keep pushing the Docs on looking for answers and best wishes for clear scans !!!

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3399
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear colonoscopy

Postby DarknessEmbraced » Mon Sep 23, 2019 11:59 am

Thank you CRguy! :) Maybe my hyperarathyroidism is affecting my digestive system. You're right they have to keep looking!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
CRguy
Posts: 10085
Joined: Sun Feb 10, 2008 6:00 pm

Re: Clear colonoscopy

Postby CRguy » Mon Sep 23, 2019 12:11 pm

You've heard this before (from ME ! :mrgreen: )
" you will miss more for NOT LOOKING ... than not knowing "

some of your signs fit with that so.....
keep them looking !

Cheers
CR
" looking looking looking
keep them doctors looking
keep them doctors looking
FOR YOU !

question question question
looking for them answers
looking for them answers
FOR YOU !

Yipppeee AYE AYYYYYY
Yipppeee AYE OOOHHHH
make them keep on lookin'
till they KNOW

Yipppeee AYE OOOHHHH
Yipppeee AYE AYYYYYY
make them keep on lookin'
Every DAY !!!! "
- with apologies to a couple of cowboy western songs from my youth :shock:

best I could do on short notice :mrgreen:
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3399
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear colonoscopy

Postby DarknessEmbraced » Mon Sep 23, 2019 12:22 pm

I like it, thank you! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Rock_Robster
Posts: 425
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Clear colonoscopy

Postby Rock_Robster » Mon Sep 23, 2019 5:59 pm

DarknessEmbraced wrote:I had a colonoscopy this morning which was clear. I'm glad it was normal but I wish I knew why my digestive symptoms have been so much worse this month. My 5 year scans will be scheduled sometime this year.

Congratulations! I’d be happy to offer you one of those *hugs* :D
Male 37; Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+
3 LN; 4 liver mets
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed a liver spot
08-11/19 - FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 - Liver resection #2
02/20 - Stoma reversal booked

annieliz
Posts: 40
Joined: Fri Jul 26, 2019 5:13 pm

Re: Clear colonoscopy

Postby annieliz » Mon Sep 23, 2019 7:21 pm

Such great news. Congrats!
66 Female
7/15/19 Colonoscopy
7/26/19 DX: Rectal Adenocarcinoma
CEA 8/8/19-1.9, 12/6/19-2.3
8/16/19 - 11/23/19 FOLFOX - 8 rounds
11/6 flex sig ~30% shrinkage 11/27/19-a bit more shrinkage
Neulasta 9/29/19, 10/27/19, 11/24/19
25 days Xeloda and radiation 12/17/2019 - 1/22/20

DarknessEmbraced
Posts: 3399
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear colonoscopy

Postby DarknessEmbraced » Tue Sep 24, 2019 11:31 am

Thank you Rock_Robster and annieliz! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 436
Joined: Fri Apr 06, 2018 11:40 am

Re: Clear colonoscopy

Postby boxhill » Tue Sep 24, 2019 12:51 pm

Good news! Hope the reason behind your mystery symptoms can be found and fixed.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable

DarknessEmbraced
Posts: 3399
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear colonoscopy

Postby DarknessEmbraced » Wed Sep 25, 2019 10:04 am

Thank you Boxhill! I think that maybe my digestive are caused by the high calcium from my hyperparathyroidism. I have been waiting since August 2018 to see the endocrinologist who holds a monthly clinic here. Then I will have to wait to be referred to a surgeon. I wish my family doctor would just refer me to a surgeon instead of still waiting for the endocrinologist. There is a doctor shortage here so I can't switch doctors. There used to be an endocrinologist here but she died and there has been no one to replace her.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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