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Stage 4 and still NED, but can’t make pump walk tomorrow

Posted: Sat Sep 21, 2019 10:10 pm
by mymom
Hi all- hope all is well. Mom had another clean scan. Still NED. In October 2015 she had her ablation and a scan few months after that showed NED and she has been that way ever since. Kemeny now wants her on a six month schedule for scans instead of four. I’m a bit nervous to wait that long but eventually mom was going to move to less scans so I knew it was coming. She just celebrated her 73rd bday sept 6. She and my father came with us to Hawaii over the summer for their 50th wedding anniversary. Amazing trip. Relaxed but also did snorkel trip, day trip to the falls, day trip to mt Kilauea walking a ton of lava flows on the mountain, luau, beach, pool...you name it.she is enjoying life.

Unfortunately a family friend passed so she will not be able to attend the hai pump walk tomorrow, Sunday.

We think of you all always
Lisa

Re: Stage 4 and still NED, but can’t make pump walk tomorrow

Posted: Mon Sep 23, 2019 10:45 am
by Claudine
Thank you for your post Lisa, it's always wonderful to hear about stage 4 folks who are now NED!