Stage 4 and still NED, but can’t make pump walk tomorrow

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mymom
Posts: 1279
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Stage 4 and still NED, but can’t make pump walk tomorrow

Postby mymom » Sat Sep 21, 2019 10:10 pm

Hi all- hope all is well. Mom had another clean scan. Still NED. In October 2015 she had her ablation and a scan few months after that showed NED and she has been that way ever since. Kemeny now wants her on a six month schedule for scans instead of four. I’m a bit nervous to wait that long but eventually mom was going to move to less scans so I knew it was coming. She just celebrated her 73rd bday sept 6. She and my father came with us to Hawaii over the summer for their 50th wedding anniversary. Amazing trip. Relaxed but also did snorkel trip, day trip to the falls, day trip to mt Kilauea walking a ton of lava flows on the mountain, luau, beach, pool...you name it.she is enjoying life.

Unfortunately a family friend passed so she will not be able to attend the hai pump walk tomorrow, Sunday.

We think of you all always
Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

Claudine
Posts: 396
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage 4 and still NED, but can’t make pump walk tomorrow

Postby Claudine » Mon Sep 23, 2019 10:45 am

Thank you for your post Lisa, it's always wonderful to hear about stage 4 folks who are now NED!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20


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