All done...hard to believe

Please feel free to read, share your thoughts, your stories and connect with others!
radnyc
Posts: 414
Joined: Tue Apr 06, 2010 6:32 pm

All done...hard to believe

Postby radnyc » Fri Sep 20, 2019 2:46 pm

Went to MSK yesterday for scheduled blood work, after what seemed an interminable wait, my doctor tells me that: "You're finished" No more scans, bloodwork. After almost ten years of this journey, I was left a bit stunned. Happy, but, as I told him, it felt like a divorce. I will NOT miss seen him or MSK, they saved my life. But, I hope I don't see the inside of a hospital for many, many more years! I'm very honored that I joined Colon Club soon after diagnosis, it's been a place to learn, grieve, sometimes argue, but also hope, lots of hope. I came on here, and like many others looked for stories of hope, success, victories and I found them, and that helped me keep going. To all of you still in the battle, hang in there, stay hopeful, surround yourself with caring people, if those aren't around often, get a furry friend, mine helped me through a lot.

Peace

Al
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

Claudine
Posts: 188
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: All done...hard to believe

Postby Claudine » Fri Sep 20, 2019 2:59 pm

Another wonderful news! That's fantastic, radnyc!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now 7.4
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: All done...hard to believe

Postby Punky44 » Fri Sep 20, 2019 6:26 pm

Awesome! Congratulations!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

zephyr
Posts: 263
Joined: Thu Aug 18, 2016 7:31 am

Re: All done...hard to believe

Postby zephyr » Fri Sep 20, 2019 8:19 pm

O.M.G.

CONGRATULATIONS! I am a vibrant emerald green with envy :mrgreen: but my happiness for you is through the roof!
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

User avatar
horizon
Posts: 1526
Joined: Tue Apr 12, 2011 10:10 pm

Re: All done...hard to believe

Postby horizon » Fri Sep 20, 2019 9:17 pm

So happy for you!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

User avatar
CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: All done...hard to believe

Postby CRguy » Fri Sep 20, 2019 10:44 pm

radnyc wrote: I came on here, and like many others looked for stories of hope, success, victories and I found them, and that helped me keep going.

...and then you became one yourself.
Congratulations

Best wishes moving forward
On the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3382
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: All done...hard to believe

Postby DarknessEmbraced » Sat Sep 21, 2019 7:36 am

Congratulations! That's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

radnyc
Posts: 414
Joined: Tue Apr 06, 2010 6:32 pm

Re: All done...hard to believe

Postby radnyc » Sat Sep 21, 2019 1:29 pm

Thanks all for your kind replies.
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: All done...hard to believe

Postby AmyG » Sat Sep 21, 2019 1:34 pm

That is simply amazing!!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

mymom
Posts: 1274
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: All done...hard to believe

Postby mymom » Sun Sep 22, 2019 5:12 pm

So happy for you! Hoping mom one day hears that as well. She is now on a six month schedule.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

boxhill
Posts: 405
Joined: Fri Apr 06, 2018 11:40 am

Re: All done...hard to believe

Postby boxhill » Sun Sep 22, 2019 7:29 pm

Fabulous news!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

Koreysue
Posts: 130
Joined: Mon Apr 30, 2018 2:36 pm

Re: All done...hard to believe

Postby Koreysue » Sun Sep 22, 2019 10:15 pm

Awesome news!
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2

Deb m
Posts: 521
Joined: Tue Jan 14, 2014 10:08 am

Re: All done...hard to believe

Postby Deb m » Mon Sep 23, 2019 9:47 am

So happy for you and love hearing these success stories.!

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: All done...hard to believe

Postby stu » Mon Sep 23, 2019 4:35 pm

Well done . You have endured very well .

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Amarie123, Google [Bot] and 36 guests