Had to have high hopes for a living...

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Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Had to have high hopes for a living...

Postby Mohrfamily » Wed Sep 18, 2019 4:47 am

...DH IS GONNA BE THAT ONE IN A MILLION
-slightly modified lyrics Panic at the Disco hugh hopes

DH is finally moving forward in the steps toward surgery! The OSU campus has 3 old style pumps left and hubby has his name on one. No surgery date yet, he finished his bloodwork they wanted yesterday in prep for chemo today. Still waiting to hear when our next trip will be for a CT or is it CTA or is it just the same thing, meet Mary Dilloff (who will place the pump and did Her fellowship ar MSK) again and also Dr. Arnold, a colorectal surgeon.

I wish I could say I'm excited, and I am but many of you know there is a wide range of emotions tied to that... Anxiety, relief, hope, fear the list goes on. I made my opinions known as well as all of yours and DH gave the green light!!
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery

Deb m
Posts: 521
Joined: Tue Jan 14, 2014 10:08 am

Re: Had to have high hopes for a living...

Postby Deb m » Wed Sep 18, 2019 8:13 am

Attitude is half the battle. Also being treated by major cancer centers with experienced doctors is a Hugh plus. Sounds like you have both those things in place. I always felt better when things started happening because to me it was the big start of kicking the hell out of the cancer. I completely understand your many emotions at this time and it's completely normal.

I will hope and pray that things continue to go well and all this will behind you soon so you both can continue on with a cancer FREE life together!

Deb

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Had to have high hopes for a living...

Postby MeAndMine » Wed Sep 18, 2019 9:09 am

That's great news! Especially being able to get one of the original style pumps. From what I've read, that's a bonus. You are at the right place and have the right attitude to get things done!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

Claudine
Posts: 188
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Had to have high hopes for a living...

Postby Claudine » Wed Sep 18, 2019 10:58 am

A lot of good news lately. That's wonderful!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now 7.4
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Had to have high hopes for a living...

Postby Lee » Wed Sep 18, 2019 1:05 pm

Getting to surgery is a big step towards NEDville,

He can do this,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Re: Had to have high hopes for a living...

Postby Mohrfamily » Wed Sep 18, 2019 2:24 pm

Thank you everyone! DH told me today that his CEA rose again, his nurse assured him that it usually takes 2-3 cycles to get back on the downward trek so he's trying not to freak out (me as well).

CEA 47 in August, 84-2 weeks ago, 109 today.

I choose to focus on the positive and hope and pray like Heck to get this pump in and the colon cancer out by 12/31/19!!!
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery

User avatar
juliej
Posts: 3052
Joined: Thu Aug 05, 2010 12:59 pm

Re: Had to have high hopes for a living...

Postby juliej » Wed Sep 18, 2019 5:16 pm

Mohrfamily wrote:DH is finally moving forward in the steps toward surgery! The OSU campus has 3 old style pumps left and hubby has his name on one. No surgery date yet, he finished his bloodwork they wanted yesterday in prep for chemo today.

Awesome news!!! It's interesting they still have a few Codman pumps there. That's what I have, so DH and I will be pump buddies! :D

I am keeping my fingers crossed that things keep moving forward! I totally understand your wide range of emotions, but try to concentrate on the "kicking cancer's butt" part!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Re: Had to have high hopes for a living...

Postby Mohrfamily » Wed Sep 25, 2019 11:10 am

SURGERY SCHEDULED! October 29th!

OSU will not only implant a codeman pump but also do the colon tumor back to back! Laparoscopic surgery here we come.

Hubby is scared, doing my best to reassure him this is what all his chemo suffering is for to get this crap out!
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: Had to have high hopes for a living...

Postby AmyG » Wed Sep 25, 2019 12:44 pm

Hey that's great!! It will be here before you know it.

Yall will have to go trick or treating throughout the hospital. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Re: Had to have high hopes for a living...

Postby Mohrfamily » Thu Sep 26, 2019 4:36 am

DH wasn't very happy realizing he's going to miss trick or treat this year (if they don't do it the weekend before). My reply was getting this done could mean many more truck or treats he WON'T miss.

Also 2nd surgeon doing the pump decided open surgery would be better. Quicker OR time, better chance of cleaning him out more effectively and the colon surgeon agreed and made mention a colostomy bag wouldn't be needed... I don't know if I mentioned that.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery


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