Guess who was told she's NED??

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Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: Guess who was told she's NED??

Postby Koreysue » Sun Sep 22, 2019 10:18 pm

Awesome, congrats!
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan
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stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Guess who was told she's NED??

Postby stu » Mon Sep 23, 2019 4:38 pm

Yippee. Just Brilliant,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Guess who was told she's NED??

Postby AmyG » Tue Sep 24, 2019 11:02 am

At the hospital currently waiting for a CT. See my oncologist next week. I'm pretty sure she's going to have me resume chemo two weeks from now.

Let's do it. I will hopefully ring the bell before Christmas.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!
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MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Guess who was told she's NED??

Postby MeAndMine » Tue Sep 24, 2019 4:45 pm

Hope your CT was quick and easy. Getting to ring that bell before Christmas? That would be one great gift!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine
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