Screw Cancer, Hospice is Here

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CRguy
Posts: 10021
Joined: Sun Feb 10, 2008 6:00 pm

Re: Screw Cancer, Hospice is Here

Postby CRguy » Mon Sep 16, 2019 12:04 pm

Wishing you Peace and Harmony on the Journey my friend.

" The path you take must be your own ."

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: Screw Cancer, Hospice is Here

Postby juliej » Mon Sep 16, 2019 5:25 pm

It’s how you live that matters. You made a choice that allows you to live your remaining days, weeks, months, years in the best way possible for you.

Now get out there and enjoy that vacation in Hawaii to the max!!! :D :D :D

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

Jannine
Posts: 184
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Screw Cancer, Hospice is Here

Postby Jannine » Mon Sep 16, 2019 8:10 pm

Pyro, enjoy your trip and your relaxation time. I'm so sorry to hear that you're going into hospice, but it sounds like it is the right decision at this time.

I admire your attitude and I hope you enjoy the respite from treatment. I wish you all my best. You are in my thoughts.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Jolene
Posts: 135
Joined: Wed Jan 23, 2019 10:17 am

Re: Screw Cancer, Hospice is Here

Postby Jolene » Mon Sep 16, 2019 8:23 pm

Thank you Pyro, for sharing your story and your hospice decision.

You are one brave soul for getting this far and I wish you all the best in finding peace and happiness ! Have an awesome vacation !
Dx @ 39 F, married
Nov 18 - Scope + MRI + CT = Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
Jan - Mar - Wait and watch in place
Mar 19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr 19 - Complete clinical response. Surgery on hold. 6 cycles of Xelox.
Aug 19 - Completed 6 cycles of Xelox.
Oct 19 - Tests/scans all clear / Continue to wait and watch

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SilverWedding
Posts: 71
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: Screw Cancer, Hospice is Here

Postby SilverWedding » Mon Sep 16, 2019 10:23 pm

This makes me cry for you and your wife, but yet I love part of the title and your drive to make moments count versus the being a victim to the other course. I prayed just now that you two are surrounded by powerful bravery to thoroughly live it up. I hate all this. Live it up.
DH, 56, Sigmoid & rectum
Adenocarcinoma 2cm
 G2: Moderately differentiated
T3N2aM0
Stage IIIb
LN 6/22
5/19 Baseline CEA value - 18.9
Lymphovascular invasion (LVI): present
Perineural invasion (PNI): not identified
Surgical margins: proximal -negative; distal - negative 1.5cm; circumferential - negative 1mm)
MSI status: Waiting‬
Lynch status: ?
KRAS/BRAF: ?
Open Restorative Proctectomy, J-Pouch Coloanal Anastomosis, Loop Ileo w/Appendectomy
Neo-adjuvant Xeloda/radiation
Adjuvant Chemo: to begin 11/19

stu
Posts: 1210
Joined: Sat Aug 17, 2013 5:46 pm

Re: Screw Cancer, Hospice is Here

Postby stu » Mon Sep 23, 2019 4:40 pm

Thinking of you and your family a lot . Hope your holiday is great .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Pyro
Posts: 303
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Screw Cancer, Hospice is Here

Postby Pyro » Sat Sep 28, 2019 7:57 am

Here’s where we are staying! We’re going to Pearl Harbor, doing a helicopter tour and spending a lot of time on the beach. I’ll see if I can send pictures along the way.

https://www.disneyaulani.com/
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

jep
Posts: 178
Joined: Sun Jun 11, 2017 7:45 pm

Re: Screw Cancer, Hospice is Here

Postby jep » Sat Sep 28, 2019 11:22 am

Spectacular!!! Enjoy that beach time with the fam, and keep the pics coming!! It’s inspiring us to book a family trip :)
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (5/19)
Surgery scheduled: 8/21/19 (surgery aborted)

Lee
Posts: 5971
Joined: Sun Apr 16, 2006 4:09 pm

Re: Screw Cancer, Hospice is Here

Postby Lee » Sat Sep 28, 2019 1:42 pm

(((Pyro)))

Thinking of you. Hope you have some wonderful beach time in Hawaii.

May you be pain free surrounded by family, friends and love.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

CrossfitChick1980
Posts: 53
Joined: Wed Nov 25, 2015 9:40 pm

Re: Screw Cancer, Hospice is Here

Postby CrossfitChick1980 » Tue Oct 08, 2019 11:54 pm

Love and light to you!
Caregiver to DH dx with Adenocarcinoma of Small Intestine
Mar14- Small Bowel Resection (dx @31)
May14-Oct14: Folfox
Apr15- Liver mets
Jun15- Xeloda/Oxalyplatin
Oct15- Folfiri/Avastin
Dec15- Liver Mets, lymph nodes shrinking.
Apr16- Liver mets gone! lymph nodes stable
Jun16- Avastin/Xeloda (MSS, KRAS)
Jul16- Maintenance Chemo
Jun18- Cancer is back in liver
Sep18- Lonsurf
Oct18- Therasphere txment (failed)
Dec18- Folfiri/Avastin
Dec 22 2018- He is no longer suffering- My Love is sleeping in Peace

Lee
Posts: 5971
Joined: Sun Apr 16, 2006 4:09 pm

Re: Screw Cancer, Hospice is Here

Postby Lee » Sat Oct 12, 2019 11:23 pm

Pyro, You continue to be in my thoughts and prayers. I hope Hawaii was totally AWESOME!!!

Never far from my thoughts and prayers,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Pyro
Posts: 303
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Screw Cancer, Hospice is Here

Postby Pyro » Sun Nov 03, 2019 10:04 am

Hawaii was great, didn’t want to leave. I had to get a catheter before we left, I had no pressure to pee! I’m also fighting a blockage again, I think. The nurses seem to think I have “disease progression” in my nether regions causing these problems, I hope not, a blockage would be a major event at this point. My lungs aren’t doing much better, I nebulize every day and have been sucking on 100% O2 quite a bit. Screw cancer.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

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ANDRETEXAS
Posts: 625
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Screw Cancer, Hospice is Here

Postby ANDRETEXAS » Sun Nov 03, 2019 11:10 am

Glad you had a great time In Hawaii. What a beautiful place! Hope all your problems are kept to a minimum. Thinking of you and praying that they are. All the best. Andre
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !


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