Screw Cancer, Hospice is Here

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Pyro
Posts: 303
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Screw Cancer, Hospice is Here

Postby Pyro » Sun Sep 15, 2019 8:52 am

The subject sums it up, when you stop chemo there isn’t many places to go plus you get all sorts of at home attention. I had problems breathing on a trip to Prescott we took, wanted some help and signing up for hospice got the help I needed that day. I met my nurse, Mary, the one who will be here every week, nice lady. I’m feeling fairly good, sleep is an issue due to steroids to help my lungs but I have drugs for that. I’m glad I don’t have to do that awful chemo again, 90 infusions is too many.

In better news, we scored 4 round trip 1st class tickets to Hawaii, thank you American Airlines. We will be staying at the Disney resort in Hawaii, can’t spell the name so I won’t. If I just sit on the beach for a week, I’ll be happy. Either way, it feels like a weight has been lifted, everything moving forward is for my comfort which I haven’t had in years, believe it or not, I look forward to it. I simply refuse to do chemo/radiation/surgery until my last breath, it isn’t worth it.

I guess I don’t have any real questions, just an update. Hug your loved ones, mine are starting to come into town more than they have in the past which is good. I feel the worst from them, I’ll be living it up in Heaven, it seems worse for caregivers. Please no treatment suggestions, I’ve had enough.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

DarknessEmbraced
Posts: 3362
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Screw Cancer, Hospice is Here

Postby DarknessEmbraced » Sun Sep 15, 2019 9:37 am

I hope you enjoy your vacation and I wish you all the best!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

Punky44
Posts: 379
Joined: Mon Oct 01, 2018 4:29 pm

Re: Screw Cancer, Hospice is Here

Postby Punky44 » Sun Sep 15, 2019 10:09 am

Thinking of you and hope your vacation is amazing.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

zephyr
Posts: 258
Joined: Thu Aug 18, 2016 7:31 am

Re: Screw Cancer, Hospice is Here

Postby zephyr » Sun Sep 15, 2019 10:22 am

Wishing you laughter, love, and peace.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

AmyG
Posts: 279
Joined: Tue Dec 25, 2018 8:08 pm

Re: Screw Cancer, Hospice is Here

Postby AmyG » Sun Sep 15, 2019 10:24 am

I'm going to pour a glass of something strong and drink it for you.

You sound at peace with everything, not like a gallon of milk with a rapidly approaching expiration date.

I wish you and your family all the best.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Pyro70
Posts: 155
Joined: Mon Jan 21, 2019 4:25 pm

Re: Screw Cancer, Hospice is Here

Postby Pyro70 » Sun Sep 15, 2019 10:55 am

Glad to hear things are as good as they can be. Being on the beach I’m sure will be nice. My wife and I have a one-way ticket to Puerto Rico on Thursday - we hope to spend the winter there.

Enjoy your time, I’m sure you still have quite a bit. I agree with you though it’s relatively easy for us. We just die our loved ones have to live with the loss forever. I do stress about my wife...
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

Dagmar
Posts: 11
Joined: Wed Aug 07, 2019 2:02 pm

Re: Screw Cancer, Hospice is Here

Postby Dagmar » Sun Sep 15, 2019 11:17 am

You give me strength and comfort. I will go back and read this emal when my time is up. I have been so grateful for everyday until I starter oxaliplatin. This drug make me depressed. I dont know if it is worth it. I would like to die at home and I have told everyone that I might be gone one day. Just like that! They are all ok with that. Enjoy you journey!

User avatar
ANDRETEXAS
Posts: 625
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Screw Cancer, Hospice is Here

Postby ANDRETEXAS » Sun Sep 15, 2019 12:12 pm

You should feel confident that you gave it everything you had...and more. I commend you, appreciate your strength and understand your decision. Enjoy Hawaii....enjoy life. Relax. You deserve it. Wishing you all the best. Andre
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

Gravelyguy
Posts: 246
Joined: Thu Jul 05, 2018 6:03 pm

Re: Screw Cancer, Hospice is Here

Postby Gravelyguy » Sun Sep 15, 2019 2:08 pm

Pyro,

Praying that you get to continue to make some wonderful memories for those that will be left behind for a time.

Enjoy your trip!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

bitchslapped
Posts: 1524
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Screw Cancer, Hospice is Here

Postby bitchslapped » Sun Sep 15, 2019 2:20 pm

As a spouse it is tough to be left behind. It is also tough to watch your loved one suffer. Your family will hurt either way as they should; they love you.
FWIW, Hospice is not set in stone. You can go off hospice & back on again @ some point if you choose.

You scored a great trip - making memories. :)

My DH wanted to "go with his boots on". What that meant to him was not lay @ home in bed waiting to die. When his dirt bike & motorcycle became too heavy for him to handle he got a four-wheeler, a walker that was suitable for outdoors. He just wanted to keep moving as long as he could. In my mind that is the spirit of a Winner. He didn't lose to cancer...or anything. No such thing exists.

I hope you continue to give updates, maybe share a pic of your upcoming vacation on the pic thread...livin life.

Best Wishes to YOU & your Family for Peace/acceptance w/the path you have chosen as best for your circumstance.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

radnyc
Posts: 404
Joined: Tue Apr 06, 2010 6:32 pm

Re: Screw Cancer, Hospice is Here

Postby radnyc » Sun Sep 15, 2019 7:31 pm

Wishing you well in your journey, you gave it your best shot, enjoy to the fullest the time you have left.

Peace
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

zephyr
Posts: 258
Joined: Thu Aug 18, 2016 7:31 am

Re: Screw Cancer, Hospice is Here

Postby zephyr » Mon Sep 16, 2019 9:27 am

bitchslapped wrote:... spirit of a Winner. He didn't lose to cancer...or anything. No such thing exists.



I'm hanging that on my bookcase.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

boxhill
Posts: 388
Joined: Fri Apr 06, 2018 11:40 am

Re: Screw Cancer, Hospice is Here

Postby boxhill » Mon Sep 16, 2019 9:47 am

Peace and love and all the best to you, Pyro.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

User avatar
ginabeewell
Posts: 348
Joined: Wed Oct 24, 2018 10:30 am

Re: Screw Cancer, Hospice is Here

Postby ginabeewell » Mon Sep 16, 2019 11:27 am

I sighed deeply reading this, but am glad it seems your head is in a good place and you have solid plans to enjoy this next phase of life. You should sit on as many beaches as possible, in my opinion.

You’ve been a source of much wisdom for me since I first came here a year ago - and continue to be. How glad I am that we’ve all learned from your experiences. Can’t wait to hear about how you’ll make the most of the time you have.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

Claudine
Posts: 173
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Screw Cancer, Hospice is Here

Postby Claudine » Mon Sep 16, 2019 11:39 am

May we all have such a positive approach and wisdom, Pyro XXXXX
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now at 5.0 (twice)
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)


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