The subject sums it up, when you stop chemo there isn’t many places to go plus you get all sorts of at home attention. I had problems breathing on a trip to Prescott we took, wanted some help and signing up for hospice got the help I needed that day. I met my nurse, Mary, the one who will be here every week, nice lady. I’m feeling fairly good, sleep is an issue due to steroids to help my lungs but I have drugs for that. I’m glad I don’t have to do that awful chemo again, 90 infusions is too many.
In better news, we scored 4 round trip 1st class tickets to Hawaii, thank you American Airlines. We will be staying at the Disney resort in Hawaii, can’t spell the name so I won’t. If I just sit on the beach for a week, I’ll be happy. Either way, it feels like a weight has been lifted, everything moving forward is for my comfort which I haven’t had in years, believe it or not, I look forward to it. I simply refuse to do chemo/radiation/surgery until my last breath, it isn’t worth it.
I guess I don’t have any real questions, just an update. Hug your loved ones, mine are starting to come into town more than they have in the past which is good. I feel the worst from them, I’ll be living it up in Heaven, it seems worse for caregivers. Please no treatment suggestions, I’ve had enough.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jan 2017-perm colost @MDA
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!