Upcoming Surgery

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galee
Posts: 10
Joined: Sat Aug 24, 2019 2:44 pm
Facebook Username: galeehardin@cox.net

Re: Upcoming Surgery

Postby galee » Sun Sep 22, 2019 2:24 pm

Deep,

I think there is a small chance I could have a temporary ileostomy. Originally I was old 10-15% chance. My surgeon did a flexible sigmoidoscopy on Friday to get a better feel of my tumor location. He told my husband I was an excellent candidate for LAR. I am okay either way. Just praying for an uncomplicated procedure. Just started my ‘cleanse’. My date with the surgical team is at 10AM tomorrow.
47 year old, Female
8/15/2019 Colonoscopy due to blood in bowels
8/20/2019 Pathology 3cm Adenocarcinoma
Recto-Sigmoid junction, 12 cm from anal verge
G2
MSS
BRAF, KRAS, NRAS Not Detected
CEA 1.8
9/23/2019 sigmoid & rectum colectomy plus left salpingo-oophorectomy, small intestine resection & appendectomy
9/30/2019 Pathology: T2N0M0, moderately differentiated adenocarcinoma (2.8cm), margins uninvolved

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Upcoming Surgery

Postby NHMike » Sun Sep 22, 2019 3:02 pm

12 CM should be very good. Best wishes for a successful surgery and we'll see you on the other side.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 347
Joined: Wed Oct 25, 2017 9:31 am

Re: Upcoming Surgery

Postby Atoq » Sun Sep 22, 2019 4:26 pm

I wish you a fast and nice recovery!

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

galee
Posts: 10
Joined: Sat Aug 24, 2019 2:44 pm
Facebook Username: galeehardin@cox.net

Re: Upcoming Surgery

Postby galee » Sat Sep 28, 2019 5:42 pm

I was released from the hospital yesterday with a foley catheter. My bladder was struggling to void all the urine it was producing.

The lowdown on surgery 9/23/2019:

LAR completed of the original 3cm tumor. Did not perform temporary ileostomy.

Splenules resulting from a childhood splenectomy in 1976 had regenerated and were twisting around my small intestines. Resulted in a resection of small intestines.

Appendix was removed.

Left ovary removed.

I have a question. Did anyone have leakage from drain site after having the drain removed? Trying not to over react but it’s a bit concerning.

Thanks everyone,
Lee
47 year old, Female
8/15/2019 Colonoscopy due to blood in bowels
8/20/2019 Pathology 3cm Adenocarcinoma
Recto-Sigmoid junction, 12 cm from anal verge
G2
MSS
BRAF, KRAS, NRAS Not Detected
CEA 1.8
9/23/2019 sigmoid & rectum colectomy plus left salpingo-oophorectomy, small intestine resection & appendectomy
9/30/2019 Pathology: T2N0M0, moderately differentiated adenocarcinoma (2.8cm), margins uninvolved

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Upcoming Surgery

Postby NHMike » Sat Sep 28, 2019 6:13 pm

galee wrote:I was released from the hospital yesterday with a foley catheter. My bladder was struggling to void all the urine it was producing.

The lowdown on surgery 9/23/2019:

LAR completed of the original 3cm tumor. Did not perform temporary ileostomy.

Splenules resulting from a childhood splenectomy in 1976 had regenerated and were twisting around my small intestines. Resulted in a resection of small intestines.

Appendix was removed.

Left ovary removed.

I have a question. Did anyone have leakage from drain site after having the drain removed? Trying not to over react but it’s a bit concerning.

Thanks everyone,
Lee


I had leakage for a few weeks - I just dressed it regularly. The amount decreased with time.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

galee
Posts: 10
Joined: Sat Aug 24, 2019 2:44 pm
Facebook Username: galeehardin@cox.net

Re: Upcoming Surgery

Postby galee » Tue Oct 08, 2019 10:00 am

Two weeks out from surgery. A question for you all:

I continue to have unanticipated challenges with my bladder. I had my catheter removed last Wednesday. Since then, I am voiding but it takes effort to get a stream started and to fully void. The urologist I saw prescribed Flomax. He flippantly stated it was most often given to males with prostate issues, did not specify how it could help my situation...I did not begin taking it but now I am questioning my decision. Did any of you struggle with bladder issues / primarily voiding post surgery? Experience with Flomax? Suggestions?

Thanks for reading and for sharing,
Lee
47 year old, Female
8/15/2019 Colonoscopy due to blood in bowels
8/20/2019 Pathology 3cm Adenocarcinoma
Recto-Sigmoid junction, 12 cm from anal verge
G2
MSS
BRAF, KRAS, NRAS Not Detected
CEA 1.8
9/23/2019 sigmoid & rectum colectomy plus left salpingo-oophorectomy, small intestine resection & appendectomy
9/30/2019 Pathology: T2N0M0, moderately differentiated adenocarcinoma (2.8cm), margins uninvolved

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Upcoming Surgery

Postby NHMike » Tue Oct 08, 2019 10:06 am

galee wrote:Two weeks out from surgery. A question for you all:

I continue to have unanticipated challenges with my bladder. I had my catheter removed last Wednesday. Since then, I am voiding but it takes effort to get a stream started and to fully void. The urologist I saw prescribed Flomax. He flippantly stated it was most often given to males with prostate issues, did not specify how it could help my situation...I did not begin taking it but now I am questioning my decision. Did any of you struggle with bladder issues / primarily voiding post surgery? Experience with Flomax? Suggestions?

Thanks for reading and for sharing,
Lee


I don’t recall any bladder issues after leaving the hospital.

I had male issues and have run into others with the
Same thing and it’s a known risk.

I assume that you already spoke to your surgeon and your
Surgeon referred you to urology.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

galee
Posts: 10
Joined: Sat Aug 24, 2019 2:44 pm
Facebook Username: galeehardin@cox.net

Re: Upcoming Surgery

Postby galee » Tue Oct 08, 2019 9:28 pm

Yes, regretfully I was not highly impressed with the urologist. I felt my concerns were a bit dismissed. I will seek an additional referral if my bladder situation doesn’t improve. My colorectal surgeon is wonderful and is supporting me in every way possible post op. My surgery ended up being much more extensive than ‘just’ the planned LAR. It has only been two weeks, so still much recovery time ahead. I must be patient.

Thanks for responding,
Lee
47 year old, Female
8/15/2019 Colonoscopy due to blood in bowels
8/20/2019 Pathology 3cm Adenocarcinoma
Recto-Sigmoid junction, 12 cm from anal verge
G2
MSS
BRAF, KRAS, NRAS Not Detected
CEA 1.8
9/23/2019 sigmoid & rectum colectomy plus left salpingo-oophorectomy, small intestine resection & appendectomy
9/30/2019 Pathology: T2N0M0, moderately differentiated adenocarcinoma (2.8cm), margins uninvolved

Zod
Posts: 20
Joined: Wed Aug 28, 2019 2:56 pm
Facebook Username: Zod

Re: Upcoming Surgery

Postby Zod » Tue Oct 08, 2019 9:54 pm

I also had an LAR 9 months ago and had (and somewhat still have) problems urinating. Not particularly bad but I seem to be able to void the "top half" of my bladder. E.g., if I'm full then I can void some easily but have to push/tense a lot to get much of the rest out. I'm also on Flomax prescribed by my urologist. Seems easier if I'm standing (e.g., at urinal or in the shower).

If only 2 weeks out AND if you can reliably go, then wait and see if oncodoc and urologist OK with that. You do NOT want to get to where you can't go at all, that's a trip to the ER I am told.


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