wife2jeff wrote:Does fiber and miralax help with not going so many times a day? This clustering (is what I think it is) where he is just going very small amounts like 20 times per day has really been getting him discouraged. He wont go anywhere and feels like he just wants to give up like nothing will help.
Is there anything he can do to help with this tenesmus? I appreciate all the help
wife2jeff wrote:Thank you, It is nice to know that there is advise here for sure. How did everyone that has found their thing to help them with their bowels, did your doctor guide you?
With the biocleanse does this produce soft to diarrhea or a more normal stool?
NHMike wrote:Other people don't experience what you're going through so they don't know. The best that they can do is read the research and make suggestions. It is an emerging area of research as more and more people wind up this way. So there is hope for better answers.
Gravelyguy wrote:NHMike wrote:Other people don't experience what you're going through so they don't know. The best that they can do is read the research and make suggestions. It is an emerging area of research as more and more people wind up this way. So there is hope for better answers.
Mike, it is interesting that you posted this. Just last week I got a survey from a research group at Mayo. They are surveying people who have had LAR surgery to help prepare those in the future for what they can expect. It was a pretty generic survey and based on the questions asked I don’t know how much help it would be so I asked to meet with someone on the research team during my next round of scans in December.
I am encouraged that they are at least starting to try to look at quality of life but like I wrote I am not sure they are even asking the right questions.
People that don’t have the problem are going to look at things a lot differently than people who do have it.
That kind of ramp up learning curve is normal for a wide variety of things.
Dave
NHMike wrote:Two people posted that they use a combination of Miralax, Nopalina and Imodium. Imodium slows things down while the other two speed things up. I can't take Imodium because I also have a small bowel obstruction. The percentage of people that get the GI problems is small as is the percentage that get SBOs. So the odds of getting both are very small but I won the lottery.
I'm going to take my stuff now so I don't forget today.
My surgeon and oncologist have pushed fiber and they are interested to know what I do and what the results are. The surgeon has offered a permanent colostomy to solve the issues but that's a last resort for me.
Other people don't experience what you're going through so they don't know. The best that they can do is read the research and make suggestions. It is an emerging area of research as more and more people wind up this way. So there is hope for better answers.
wife2jeff wrote:I looked up Nopalina but there seems to be several out there, are there capsules as well? Can you send a link on which one you use? That would be great. I think he would try this. When you say it helped with the "urge" to need to go frequently was that the fiber or immodium? And did you have pain with this urge? Sorry hope not to personal, I don't know if yours was a low anterior resection like his.
One more thing when he starts this does he need to introduce it slowly? I know increasing fiber too fast can have some side effects in itself.
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