Help with bowels

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Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Help with bowels

Postby Gravelyguy » Mon Sep 16, 2019 8:51 pm

wife2jeff wrote:I think he might like trying the capsules can you put a link to the ones you take? there seems to be a lot of different napolinas. Also when you do this are you taking the miralax, napolina and the immodium all at the same time or the napolina and immodium at the same time??


Wife2jeff,

I sure hope this works for your husband!

If it doesn’t I would love for someone else to try the BioCleanse to see if it helps them. I just got home, been gone since 7 this morning. Taught a full day and then coached at a cross country meet so gone for 13 hours. Only went to the bathroom this morning at 6 and haven’t felt the urge to go since.

It would great to see if this can be replicated with someone else. I hate what this disease has done to so many and would love to help others’ QOL.

Dave
Last edited by Gravelyguy on Tue Sep 17, 2019 5:40 am, edited 1 time in total.
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

wife2jeff
Posts: 65
Joined: Thu Sep 12, 2019 11:21 pm

Re: Help with bowels

Postby wife2jeff » Mon Sep 16, 2019 10:11 pm

Well we actually will look into that too. When I looked it up I felt that it produced diarrhea not a normal bm is that the case? That was our only concern when you see "cleanse" you think of like what the colonoscopy prep does.

Tupelo honey
Posts: 42
Joined: Tue Jul 19, 2016 7:57 pm

Re: Help with bowels

Postby Tupelo honey » Tue Sep 17, 2019 12:25 am

wife2jeff wrote:... Also when you do this are you taking the miralax, napolina and the immodium all at the same time or the napolina and immodium at the same time??


Yes, I take all three in the morning- around 8 or 9
Am. I use the powder (https://www.amazon.com/gp/aw/d/B01880VN ... asin_title) but afaik, there’s only be capsule: perhaps Mike can confirm? https://www.amazon.com/Nopalina-Formula ... ina&sr=8-3
Rectal Cancer Stage 3A 10-22-2015 T2N1M0
Start Chemo radiation 11/2015
LAR TME w/ total hysterectomy 3/14/2016 pT2N1M0 No ileo, straight connect
Start Xelox 4/21/16 1 week on/1 week off
Switch to Xelox 2 weeks on/1 week off 6/1/2016
Supplements: Curcumin, PSK, Celixicob, Cimetidime, Glutamine, L-Acytel Carnitine, Vit D, Vit B6, Vit B12, magnesium, calcium, aspirin, metformin, modified citrus pectin
10/2016 NED
03/2017 NED
07/2017 NED
11/2017 NED
05/2018 NED
11/2018 NED
11/2019 NED

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Help with bowels

Postby NHMike » Tue Sep 17, 2019 5:14 am

Tupelo honey wrote:
wife2jeff wrote:... Also when you do this are you taking the miralax, napolina and the immodium all at the same time or the napolina and immodium at the same time??


Yes, I take all three in the morning- around 8 or 9
Am. I use the powder (https://www.amazon.com/gp/aw/d/B01880VN ... asin_title) but afaik, there’s only be capsule: perhaps Mike can confirm? https://www.amazon.com/Nopalina-Formula ... ina&sr=8-3


That’s the one I get.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Help with bowels

Postby Gravelyguy » Tue Sep 17, 2019 5:39 am

For me BioCleanse has not caused any diarrhea. It has just helped all the little fragments, that used to come out throughout the day, come out at one time.

I still have some trigger foods that I need to watch like dairy and high sugar foods. They tend to produce more clustering and my wife’s chili but that could be an issue even before cancer!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

wife2jeff
Posts: 65
Joined: Thu Sep 12, 2019 11:21 pm

Re: Help with bowels

Postby wife2jeff » Tue Sep 17, 2019 5:47 pm

The BioCleanse is still of interest however there is no way I can get my husband to drink that much water lol. Summer maybe but not now especially with how his stomach always feels but I'm still going to keep it in the back of my mind for later.

After looking more into both now we are torn, the BioCleanse is expensive where would I find a plexus dealer?

Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Help with bowels

Postby Gravelyguy » Tue Sep 17, 2019 9:10 pm

It is a lot of water particularly if you aren’t naturally a water drinker. I was a pretty big water drinker before cancer but even I had to work up to it. I am not a coffee or tea guy and soda doesn’t sit real well any more so that narrows the options!

If you don’t know anyone and want to try BioCleanse PM me and I can help out.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Help with bowels

Postby NHMike » Tue Sep 17, 2019 9:15 pm

How much water do you have to drink?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Help with bowels

Postby Gravelyguy » Tue Sep 17, 2019 9:56 pm

Mike,

I try to drink 80-100 ounces. I weight around 175 or so and the recommendation is to drink at least half your weight in ounces a day. I have much less evening clustering and gas when I get enough water.

The combination of the BioCleanse, water, and I think the probiotics has really helped me regain a pretty normal life.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Help with bowels

Postby NHMike » Wed Sep 18, 2019 8:23 am

Gravelyguy wrote:Mike,

I try to drink 80-100 ounces. I weight around 175 or so and the recommendation is to drink at least half your weight in ounces a day. I have much less evening clustering and gas when I get enough water.

The combination of the BioCleanse, water, and I think the probiotics has really helped me regain a pretty normal life.

Dave


My target is 60-80 ounces a day, more if I'm doing a lot of cardio.

My current approach is showing some good signs - Slippery Elm and Nopalina morning and evening. I was only doing it once a day. I also only eat in the evening. I have been eating daily recently. I was fasting for 3-4 days a week before that.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Gravelyguy
Posts: 300
Joined: Thu Jul 05, 2018 6:03 pm

Re: Help with bowels

Postby Gravelyguy » Wed Sep 18, 2019 8:50 am

That is great news Mike!

I am not sure how you have been able to manage with all your fasting. The whole supplement thing is quite the trial and error process isn't it. I am thankful I had a little more flexibility this summer so when I did have some off days it didn't impact too much.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Help with bowels

Postby NHMike » Wed Sep 18, 2019 9:11 am

Gravelyguy wrote:That is great news Mike!

I am not sure how you have been able to manage with all your fasting. The whole supplement thing is quite the trial and error process isn't it. I am thankful I had a little more flexibility this summer so when I did have some off days it didn't impact too much.

Dave


I lost about 30 pounds which I wanted to do though not really aggressively. So there was a minor back-motivation.

The advantage of losing weight is that you don't need as many calories to sustain yourself. I would like to lose another 30 pounds but I'd look like a teenager if I did that. It's hard to get in the exercise that I'd need to do that working a lot of hours.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

wife2jeff
Posts: 65
Joined: Thu Sep 12, 2019 11:21 pm

Re: Help with bowels

Postby wife2jeff » Wed Sep 18, 2019 10:57 am

How many napolina capsules do you take in the am and pm? and also do you have to work up to that amount?
Last edited by wife2jeff on Wed Sep 18, 2019 11:45 am, edited 1 time in total.

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Help with bowels

Postby NHMike » Wed Sep 18, 2019 11:15 am

wife2jeff wrote:How many napolina capsules do you take in the am and pm? and also do you have to work up to that amount?


4. It’s actually the recommended dose on the bottle. I didn’t have to work up to it. I think that the amount in the capsules is quite a bit less than the powder form in the bags. I could never finish a glass of the powder.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

wife2jeff
Posts: 65
Joined: Thu Sep 12, 2019 11:21 pm

Re: Help with bowels

Postby wife2jeff » Wed Sep 18, 2019 11:53 am

Ok thanks, I don't think he would be able to finish the glass either at least in an adequate amount of time. He could but over hours, that's why capsules is the route we took. Ordered them. Hoping and praying this will help him get his bowels moving more regular without all the clustering. He had a very rough night last night. He was up several times with clustering.


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