wife2jeff wrote:I also wanted to ask if that constant "urge" to need to go ever gets better?
As someone else wrote, it will get better but probably not as quickly as you hope. There doesn't seem to be a one-size-fits-all solution. Even after the clustering stops, your husband will need to adjust to a new normal.
For what it's worth (file this under: you get what you pay for and this is free), when he's constipated for more than 24 hours, you might consider using a glycerin suppository. That was a suggestion from my GI doc and it helped me. You can buy them over the counter at probably any drugstore. I've purchased them at Walgreens and CVS. One issue I had with the clustering/constipation combo was severe hemorrhoids. If that happens, and if you're lucky enough to live in a medical marijuana state, marijuana suppositories saved my sanity and did a better job healing my insides than anything else I tried over a period of two years. Like WAY better. You can easily make them at home. They're a bit pricey because of the Rick Simpson oil but worth the cost, IMO. For THE best recipe I've found, here's a video by Backdoor Medicine with directions in case you want to try them:https://www.youtube.com/watch?v=ee9-CNLQrcU&feature=youtu.be
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin