Cancer households should not have to deal with lice

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ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Cancer households should not have to deal with lice

Postby ginabeewell » Wed Sep 11, 2019 10:53 pm

I feel very, very strongly about this.

I cannot understand why the lice bugs are not aligned.

It really, really, really does not seem fair. DON'T WE HAVE ENOUGH HAIR PROBLEMS???

This is all.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

princey
Posts: 3
Joined: Fri Nov 02, 2018 2:53 pm

Re: Cancer households should not have to deal with lice

Postby princey » Thu Sep 12, 2019 7:47 am

OH!!!! I feel you! In the midst of my husbands chemo/radiation I had to deal with both my daughters having lice ( who both have very long hair!!!) and then I had it too!!!! ugh. I took a looooong time to get rid of it too. I hope it's better for you and may all your people have short hair :)

kandj
Posts: 264
Joined: Sun Sep 27, 2015 11:29 am

Re: Cancer households should not have to deal with lice

Postby kandj » Thu Sep 12, 2019 8:10 am

Ugh. I feel you. my oldest caught lice on the bus. The kids sit 3 across (which seems insane for junior high kids!) and their heads are so close. It was my first experience with lice on my kids. I was tempted to shave everyones heads that day. I didn't go nuts though with the cleaning, as I have read that you really don't need to. His bedding got a good cleaning and pillow got tossed in the dryer on high heat for an hour. Luckily no one else in the family got it.

My head is itching just thinking about it.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19
New spot seen in lungs and adrenal gland 11/2019

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Cancer households should not have to deal with lice

Postby NHMike » Thu Sep 12, 2019 11:42 am

We've never had to deal with lice but I've certainly read about them.

I'd guess that lice wouldn't touch someone on Chemo.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

annieliz
Posts: 40
Joined: Fri Jul 26, 2019 5:13 pm

Re: Cancer households should not have to deal with lice

Postby annieliz » Thu Sep 12, 2019 11:59 am

Totally not fun. My daughter got them when she was in theater camp where the kids shared wigs.
I believe you said you live in Chicago area - you might treat yourself to a service like this: https://www.hairfairies.com/chicago-lice-treatment/
66 Female
7/15/19 Colonoscopy
7/26/19 DX: Rectal Adenocarcinoma
CEA 8/8/19-1.9, 12/6/19-2.3
8/16/19 - 11/23/19 FOLFOX - 8 rounds
11/6 flex sig ~30% shrinkage 11/27/19-a bit more shrinkage
Neulasta 9/29/19, 10/27/19, 11/24/19
28 days Xeloda and radiation starts 12/16/2019

Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Re: Cancer households should not have to deal with lice

Postby Mohrfamily » Thu Sep 12, 2019 12:29 pm

Gina everyday throw pillows, cases, sheets, blankets in the dryer on high heat for an hour if you don't want to run up a big water bill. My daughter caught lice from my sisters kids and I lice combed in and out of the tub I bought a static comb to zap anything the sensors came in contact with and a comb that vacuums the hair. Blow dry everytine you wash.... There's more I'm sure but back to work.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery

User avatar
ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Cancer households should not have to deal with lice

Postby ginabeewell » Thu Sep 12, 2019 2:02 pm

NHMike wrote:I'd guess that lice wouldn't touch someone on Chemo.


You would think that, wouldn't you? Unfortunately Google revealed otherwise. So far, I seem to not have contracted anything, but I have four kids in the house and everyone uses our hairbrushes / lounges in our bed / etc. And honestly treating the household is as bad as anything else.

We literally just went through this with three of them - 50% of our household - and thought after three Cetaphil treatments each, we had wiped them out. Then the oldest girl found lice in her hair again last night, and my husband spent two hours combing it out, treating her, etc, etc, etc.

This morning her brother told us he used her brush, because he couldn't find his own. WHAT are you thinking you KNOW SHE HAS LICE???

The girls don't like being blow dried, but maybe this would encourage them to give in for a few weeks...
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Cancer households should not have to deal with lice

Postby MeAndMine » Thu Sep 12, 2019 3:20 pm

Yikes! I can't imagine. Sounds like you are doing everything to get them gone. I was trying to remember what I heard to keep them from coming back but it's been a while since I read about it. I think I read to put the girls' hair up in a pony tail and spritz with tea tree oil. I used to read everything I could find about it when it was going around the school but they didn't bring them home so I never needed the tips I found.

Good luck, hope they are gone soon!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: Cancer households should not have to deal with lice

Postby AmyG » Thu Sep 12, 2019 5:39 pm

I'd be tempted to burn everything to the ground. :lol: I'm pretty pissy for some unknown reason and I'm about to go angry clean under my couch.

I can at least be thankful I'm not dealing with bugs. I'm so sorry that you are!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

User avatar
ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Cancer households should not have to deal with lice

Postby ginabeewell » Thu Sep 12, 2019 9:22 pm

AmyG wrote:I'd be tempted to burn everything to the ground. :lol: I'm pretty pissy for some unknown reason and I'm about to go angry clean under my couch.

I can at least be thankful I'm not dealing with bugs. I'm so sorry that you are!


You’re pissy - maybe because you just had surgery?!

Taking a card from my therapist: be gentle with yourself. Your body is using a lot of energy to repair your organs.

I don’t think you are on steroids now, but I will say that going on (and off) them really made me want to go crazy on people sometimes.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: Cancer households should not have to deal with lice

Postby AmyG » Thu Sep 12, 2019 9:46 pm

I cleaned... and baked cookies. There's some law somewhere that says it's impossible to be pissy when cookies are involved. :lol:

We all had a crummy day here. Part of it has to be that it's almost mid September and it's still 95F outside with no relief in the forecast. The heat is going to be encroaching on pumpkin spice and sweatshirt season soon!!

It's okay though, I'm happy I'm alive to have a less than perfect day. Totally better than the alternative!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cancer households should not have to deal with lice

Postby stu » Fri Sep 13, 2019 4:23 am

Hated dealing with lice . I was half way through transferring a patient once when I noticed considerable movement on her hair . Nearly dropped her.

I got a solution for the heat Amy !! Scotland :D
You could come and join us for a bit . A little wet but not to warm, not too cold yet .

Have a good day ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Mohrfamily
Posts: 195
Joined: Tue May 22, 2018 4:04 pm

Re: Cancer households should not have to deal with lice

Postby Mohrfamily » Fri Sep 13, 2019 4:37 am

A good tea tree oil shampoo is supposed to repel them so does mint. Gina I promise I've tried it all, I was mortified by the stigma of it at first which led me to buying anything and everything to see what worked best and I really recommend the vac comb and high heat drying daily.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery

boxhill
Posts: 405
Joined: Fri Apr 06, 2018 11:40 am

Re: Cancer households should not have to deal with lice

Postby boxhill » Sat Sep 14, 2019 11:21 am

I can't even. :shock:
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable


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