Treatment at MSK
Posted: Sat Sep 07, 2019 3:27 am
Hi everyone,
Based on their great success treating several people on here, I've decided to get to MSK with my boyfriend for a second opinion. (liver and lung mets, about 50% reduction in size after 8 cycles of FOLFIRI + Vectibix. Just completed 12th cycle and hoping for a chemo break after a CT scan next week) We live in Denmark and would fly to NYC for a face to face appointment. First step for me is to gather all his medical records, chemo records, CT scans, etc (I got a long list of records needed), and translate them all to English. Should be pretty straight-forward for the most part. I've been reading his journal online since the beginning, so I'm pretty familiar with all the jargon by now. Will definitely take some hours though!
I would love to know more about anyone's experiences at MSK and specifically with Dr Kemeny! Those of you who have/had her as your doctor, how did you manage that? Was it difficult to become her patient?
How long did you have to wait for your first appointment? How long do you think we'll need to stay in NYC for the second opinion?
The other thing is, in Denmark all health care is free, as we live in a welfare state. So we have no extra medical insurance, which means we would pay for everything out of our pockets. ANY idea of how much it would be for an HAI pump/liver resection if we get so lucky? I know it is probably a massive amount of money, but I'd love to know what kind of amount we are talking about. If they think they can help Jesper we'll work out the money somehow.
Any information is much appreciated! I don't know much about the whole system in the US, so any stories/data/info about MSK and Dr Kemeny would be great!
Ml,
Alexandra
Based on their great success treating several people on here, I've decided to get to MSK with my boyfriend for a second opinion. (liver and lung mets, about 50% reduction in size after 8 cycles of FOLFIRI + Vectibix. Just completed 12th cycle and hoping for a chemo break after a CT scan next week) We live in Denmark and would fly to NYC for a face to face appointment. First step for me is to gather all his medical records, chemo records, CT scans, etc (I got a long list of records needed), and translate them all to English. Should be pretty straight-forward for the most part. I've been reading his journal online since the beginning, so I'm pretty familiar with all the jargon by now. Will definitely take some hours though!
I would love to know more about anyone's experiences at MSK and specifically with Dr Kemeny! Those of you who have/had her as your doctor, how did you manage that? Was it difficult to become her patient?
How long did you have to wait for your first appointment? How long do you think we'll need to stay in NYC for the second opinion?
The other thing is, in Denmark all health care is free, as we live in a welfare state. So we have no extra medical insurance, which means we would pay for everything out of our pockets. ANY idea of how much it would be for an HAI pump/liver resection if we get so lucky? I know it is probably a massive amount of money, but I'd love to know what kind of amount we are talking about. If they think they can help Jesper we'll work out the money somehow.
Any information is much appreciated! I don't know much about the whole system in the US, so any stories/data/info about MSK and Dr Kemeny would be great!
Ml,
Alexandra