I don't have much longer.

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JustAThought
Posts: 2
Joined: Wed Aug 28, 2019 11:26 pm

I don't have much longer.

Postby JustAThought » Wed Aug 28, 2019 11:38 pm

Got back from a surgery last week. Took a bit of time to recover. Results came in - not looking good. My kids are young (son and daughter just started grade seven) and my wife is scared to death, but who could blame her? Hoping to spend as much time as possible with my family. The doctor says around 4 months. He suggested a higher dosage of the same meds I've been on since the start of the year in hopes of slowing progression. I accepted.

Been through this entire shenanigan for 5 years now. Now's no excuse to be holding off on parts of life I've been meaning to catch up on. Please all - take good care of yourselves and others. I know my son and I have not been on the greatest terms, but my love for him is higher than the stars.

Love to all,
Joe
Last edited by JustAThought on Thu Aug 29, 2019 4:46 pm, edited 1 time in total.

stu
Posts: 1201
Joined: Sat Aug 17, 2013 5:46 pm

Re: I don't have much longer.

Postby stu » Thu Aug 29, 2019 12:52 pm

Hi Joe ,

I am so sorry to hear that . I wish you much peace and surrounded by the love of your family as you process this news and find a way forward .

I also send my love to your wife . Such a difficult time for you both .

Take special care,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Deb m
Posts: 507
Joined: Tue Jan 14, 2014 10:08 am

Re: I don't have much longer.

Postby Deb m » Thu Aug 29, 2019 2:07 pm

So sorry Joe.

MeAndMine
Posts: 123
Joined: Mon Aug 05, 2019 2:40 pm

Re: I don't have much longer.

Postby MeAndMine » Thu Aug 29, 2019 2:15 pm

I am so sorry to hear that. I know your son knows your love for him along with your whole family. We are harder on ourselves when it comes to things like that, but they feel it, I'm sure.
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

JustAThought
Posts: 2
Joined: Wed Aug 28, 2019 11:26 pm

Re: I don't have much longer.

Postby JustAThought » Thu Aug 29, 2019 4:19 pm

Thanks to all for your words. I never properly introduced myself. Found this forum as a way to vent. I'm currently sitting back on my recliner next to Wilbur the family terrier. The day is lovely so far. I hope to continue working until my heart gives out. It takes this cancer off my mind, and helping kids grow stronger is such a treat.

Pleasant afternoon,
Joe

Nordy1
Posts: 34
Joined: Tue Oct 02, 2018 11:45 pm

Re: I don't have much longer.

Postby Nordy1 » Thu Aug 29, 2019 11:44 pm

Hi Joe

I’m so sorry to hear you and your family is going through this. I think this is a safe place to vent your fears/worries and speak plainly about what your dealing with. You are facing the exact thing we are all scared of and fighting so hard to beat. I think most of us here have probably thought deeply about the possible outcomes but I’m not sure anyone can ever be totally prepared for the reality of it all. I know personally that it’s very hard to speak freely with my family regarding what I’m feeling or thinking because I see the pain and fear it causes them. It also seems to put people in a position where they feel compelled to say something to tell you to be positive and maybe we should eat more vegetables...( humour)

I’m sorry all of this was to say that this is a safe place to vent and say what you need to say.

Sending you and your family good wishes and warm hugs

Nordy1
jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019

User avatar
Atoq
Posts: 348
Joined: Wed Oct 25, 2017 9:31 am

Re: I don't have much longer.

Postby Atoq » Fri Aug 30, 2019 3:44 pm

I am really sorry, is difficult to find the words to say more. A big hug to you and your family.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

Pyro
Posts: 299
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: I don't have much longer.

Postby Pyro » Fri Aug 30, 2019 9:06 pm

JustAThought wrote:Got back from a surgery last week. Took a bit of time to recover. Results came in - not looking good. My kids are young (son and daughter just started grade seven) and my wife is scared to death, but who could blame her? Hoping to spend as much time as possible with my family. The doctor says around 4 months. He suggested a higher dosage of the same meds I've been on since the start of the year in hopes of slowing progression. I accepted.

Been through this entire shenanigan for 5 years now. Now's no excuse to be holding off on parts of life I've been meaning to catch up on. Please all - take good care of yourselves and others. I know my son and I have not been on the greatest terms, but my love for him is higher than the stars.

Love to all,
Joe


We are living parallel lives, even are kids are the same age (12 year old boys can be, er, a challenge). I opted for nothing, what did they give you to slow it down?
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

DarknessEmbraced
Posts: 3348
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I don't have much longer.

Postby DarknessEmbraced » Sat Aug 31, 2019 10:32 am

I'm so very sorry!*hugs* I wish you peace and comfort!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

Tupelo honey
Posts: 39
Joined: Tue Jul 19, 2016 7:57 pm

Re: I don't have much longer.

Postby Tupelo honey » Sat Aug 31, 2019 2:14 pm

JustAThought wrote:Got back from a surgery last week. Took a bit of time to recover. Results came in - not looking good. My kids are young (son and daughter just started grade seven) and my wife is scared to death, but who could blame her? Hoping to spend as much time as possible with my family. The doctor says around 4 months. He suggested a higher dosage of the same meds I've been on since the start of the year in hopes of slowing progression. I accepted.

Been through this entire shenanigan for 5 years now. Now's no excuse to be holding off on parts of life I've been meaning to catch up on. Please all - take good care of yourselves and others. I know my son and I have not been on the greatest terms, but my love for him is higher than the stars.

Love to all,
Joe


I’ve returned to re-read this post several times and finally logged in to comment. What a beautiful, powerful post in both brevity and weight. May you live your life in such love, my friend. As noted from the Bible to the Beatles, it is all we need and we all need it. Thank you for the reminder.
Rectal Cancer Stage 3A 10-22-2015 T2N1M0
Start Chemo radiation 11/2015
LAR TME w/ total hysterectomy 3/14/2016 pT2N1M0 No ileo, straight connect
Start Xelox 4/21/16 1 week on/1 week off
Switch to Xelox 2 weeks on/1 week off 6/1/2016
Supplements: Curcumin, PSK, Celixicob, Cimetidime, Glutamine, L-Acytel Carnitine, Vit D, Vit B6, Vit B12, magnesium, calcium, aspirin, metformin, modified citrus pectin
10/2016 NED
03/2017 NED
07/2017 NED
11/2017 NED
05/2018 NED
11/2018 NED

Lee
Posts: 5971
Joined: Sun Apr 16, 2006 4:09 pm

Re: I don't have much longer.

Postby Lee » Sat Aug 31, 2019 9:05 pm

I am so sorry to read this, I pray you will have many good days ahead of you.

You will be in my thoughts and prayers.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
henry123
Posts: 203
Joined: Sun Oct 08, 2017 3:25 am

Re: I don't have much longer.

Postby henry123 » Sun Sep 01, 2019 2:18 am

Joe
Best wishes to you. Try and enjoy whatever time you have on this planet. It may be longer than you think. Or maybe not. Leave that decision to higher power with whom we all ultimately remerge.

We are all individual souls with our own scripts so don't worry about future too much.
Hugs and love.
H
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 CT Clear NED
6/19 .9 CT clear
9/19 1.2
Vegan yoga juicing
Still on opdivo


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