Hi cmarie, congrats and very glad to hear the surgery went well. Sorry about the stoma - indeed it’s a shock when you’re young.
I’m 37 and have had an ileostomy for about a month now. By most views, colostomies are easier to manage. It was almost a part-time job for about 2-3 weeks, then it all just became routine and now I mostly don’t even think about it. The stoma nurses are generally amazing - ask lots of questions and don’t settle with an outcome until you’re satisfied with it!
There’s LOTS of products out there, and the manufacturers would love to have you as a customer. Keep it simple at first but don’t be afraid to experiment if things are bothering you.
One thing I would check out is the Stealth Belt at http://www.stealthbelt.com
- the difference for me before and after this is like night and day.
Good luck, this will all be behind you (or as the case may be, in front you) soon...
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1apM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN+
08/19 - Missed liver spot
08/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 2
10/19 - Planned liver resection #2 & ileo reversal