Help. Squirt bottle recommendations?

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TinaFish
Posts: 174
Joined: Sun Jul 21, 2019 10:11 am

Re: Help. Squirt bottle recommendations?

Postby TinaFish » Wed Aug 28, 2019 11:15 pm

Dude, how much does it suck that the vast majority of us will need to pack a travel bag like that, JUST for our assholes?
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

NHMike
Posts: 2200
Joined: Fri Jul 21, 2017 3:43 am

Re: Help. Squirt bottle recommendations?

Postby NHMike » Thu Aug 29, 2019 5:29 am

TinaFish wrote:Dude, how much does it suck that the vast majority of us will need to pack a travel bag like that, JUST for our assholes?


I think that the research indicates that about 11 to 15 percent experience LARS. If LARS is too difficult to deal with, then there is the option of a permanent colostomy though I think that you’d carry a small kit around with you there too. I carried around a small kit when I had my ileostomy.

The LARs situation may improve with time or we may just get better at managing it. My large bag is overkill. Most times you only need one or two bottles and a brick if Kirkland wipes will last me a couple of months. That’s why I also have the small bag.

I’ll write up a web page with this stuff one of these days.

One other aspect of this stuff is the stages of cancer and cancer treatment.

When you are diagnosed, you worry about survival and ensuring that your loved ones are taken care of. At some stage, you realize that you're likely to survive and then you want to maximize your odds and quality of life on the other side. The doctors tend not to tell you about the potential difficulties on the other side - at least that's my experience. I learned a lot more about it on these forums. I think that they're primarily concerned with your survival (for which I'm very grateful), and they don't live with this stuff so they don't know it on an intimate basis.

I try to be pragmatic about the difficulties after treatment. I do Yoga balance poses for the neuropathy in my toes. I have my LARS kits to minimize the inconvenience the effects of LARS. And I try to look at aspects of diet, supplements and exercise to make things better.

I feel much more comfortable traveling with my large kit in that I can manage disasters with it. Or that I can manage things well enough until I can get to a drugstore to get additional supplies. That actually did happen on a trip to Orlando last month. I took an Immodium as a test and it turned into a disaster. The kit saved me for long enough so that I could stop at a CVS for additional supplies. Don't take Immodium if you have blockages!
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Pyro70
Posts: 143
Joined: Mon Jan 21, 2019 4:25 pm

Re: Help. Squirt bottle recommendations?

Postby Pyro70 » Sat Aug 31, 2019 8:25 am

Amazon sells compact compressible travel bidets. But lately I’ve found it easier just to use a Sitz bath at the Hotel/airbnb when traveling. Out and about I just use wet wipes.
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

Jannine
Posts: 170
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Help. Squirt bottle recommendations?

Postby Jannine » Wed Sep 04, 2019 6:31 pm

Thanks for all the recommendations, and Mike, thanks for the photos of your kit. I got a 3-pack of peri irrigation bottles and I'll put together a small travel kit, just in case.

The good news is that it has now been over 3 weeks since my last c diff flare-up, which is the longest I've gone without it coming roaring back. Also, the last few days I've had more solid bowel movements than I'd had for months.

I'm trying to be super clean in the hopes that I may have it beat for now. I'll still take my supplies with me to Seattle, but I'm feeling cautiously optimistic about things, finally.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear


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