Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

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k0chr
Posts: 20
Joined: Wed Jun 05, 2019 5:08 pm

Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

Postby k0chr » Wed Aug 21, 2019 6:23 pm

It's certainly been an eventful 30 days. The day I returned the pump for my second cycle, I wound up back at the infusion center crumpled in a wheelchair puking my guts out in pain. Gallbladder tests ensued and, eventually, out it came (I hate, hate, hate outpatient surgeries). Four days after removal, of course a Saturday, my left arm swelled, became painful, and turned blue. The on-call surgeon told us it wasn't likely to be bloodclots & was just probably "something with the port." :x Something with the port, indeed, where that something is DVT. By the time Monday rolled around and we talked to oncologist who sent me to get an ultrasound, the radiologist found
[N]oncompressible thrombus in the left internal jugular vein. The thrombus extends into the left subclavian and axillary veins. There is noncompressible superficial thrombus in theleft basilic vein in the upper arm.

Positive DVT in the left upper extremity involving the left internal jugular vein, subclavian, and axillary veins with the superficial thrombus in the left basilic vein.

So, now it's daily Lovenox injections likely for the remainder of chemo according to the onc. I also get to wear a nice compression sleeve on my left arm. So much for trying not to spread the news about my diagnosis around. This whole thing has certainly gone downhill rapidly. :roll:
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor, clear margins
G2 IIIA T2N1AM0
1/10 positive
07/08/19: starting FOLFOX, 12 cycles
08/14/19: gallbladder removed
08/19/19: DVT left internal jugular vein, subclavian, & axillary veins, daily Lovenox injections

Rock_Robster
Posts: 290
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

Postby Rock_Robster » Wed Aug 21, 2019 6:50 pm

Hi K0chr,

Really sorry to hear this - our DVT experiences are so similar though I had to post something. My catheter tip spontaneously migrated after my 2nd cycle of chemo, from my vena cava up to the subclavian vein on the opposing side from the port (my left). I took a load of FOLFOX into this vein without knowing, and it immediately became swollen and painful. Both my surgeon and oncologist said it was on the “wrong side” for a port problem, and suggested I see a physio. The physio was worried and suggested my GP. The GP ran bloods, x-Ray and a Doppler, found the stray catheter and a large DVT - running subclavian, brachial and cephalic veins. Geez they’re painful!

Anyway the good news from this story - they removed the port straight away, I started on clexane injections twice daily, and spent 2 nights in hospital monitoring for PE. It didn’t delay my chemo at all, and 2 months later the clot had completely resolved on Doppler. I went on to have a liver resection and rectal resection without clotting/bleeding issues. I started seeing a haematologist (once I was clear my surgeon knew little about this stuff), and she’s been great. She kept me on the clexane for 6 months during treatment out of an abundance of caution, and just this month I switched to oral anticoagulation. Neither of these have been a problem for surgeries.

Anyway, I hope your aftermath and recovery is as benign as mine was.

Rob
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1apM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN+
08/19 - Missed liver spot
08/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 2
10/19 - Planned liver resection #2 & ileo reversal

boxhill
Posts: 336
Joined: Fri Apr 06, 2018 11:40 am

Re: Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

Postby boxhill » Wed Aug 21, 2019 7:03 pm

Good god, that sounds awful!

The variety of things that can afflict us never ceases to amaze me.

The on-call surgeon sounds like a bit of a twit, BTW.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

Postby TinaFish » Fri Aug 23, 2019 9:15 pm

Seriously, you dealt with that s*** from Saturday to Monday? your doctor should have told you to go to the hospital!
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

Rock_Robster
Posts: 290
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Chemo on hold for gallbladder removal & then DVT in upper extremity. Ugh.

Postby Rock_Robster » Fri Aug 23, 2019 9:59 pm

PS: if you’re looking for some positives in all this, there is some research suggesting anticoagulation therapy may inhibit cancer metastasis... So who knows, maybe this has all been a gift (that’s what I tell myself, anyway!)
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1apM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN+
08/19 - Missed liver spot
08/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 2
10/19 - Planned liver resection #2 & ileo reversal


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