1 Year Scan

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crikklekay
Posts: 92
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

1 Year Scan

Postby crikklekay » Mon Aug 19, 2019 1:03 pm

Long time no see! We're coming up on our 1 year CT Scan this weekend and to say I'm anxious about it would be an understatement. I have a hard time talking to anyone about scanxiety as they don't quite understand, and it's tiring when the response is a patronizing pat on the back coupled with "everything will be fine, stop fretting!" I've been able to hold off the worst of my anxiety until recently since it's looming right around the corner.

His 1 year colonoscopy went well, only 1 polyp and it was benign. His CEA levels have continually dropped and other than some weird anemia issues that were resolved his blood work has been normal except for one value: the alk phos. That stupid number has stayed high all year, but since all his other liver numbers are perfect they aren't very concerned and believe it to be fatty liver. That might be because while it's high I guess it isn't dangerously high but I would be a lot less worried if all his tests were within normal ranges. Much to his dismay I ask frequently how he's feeling, if his bowel movements are normal, has he had any weird or new sensations, etc. and for the last few months everything has been fine. Or as he likes to say, "Normal for me". So I'm trying to cling to those good things in hope the scan will come back clear and start a second year in remission.

You guys have been right here with me for our journey so far, so since I need a little extra support coming up on this milestone I thought I would make a post. This place has always made me feel a little less alone <3
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear

User avatar
mobrouser
Posts: 155
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: 1 Year Scan

Postby mobrouser » Mon Aug 19, 2019 9:07 pm

Wishing DH good results on this scan. Things sound good going in with all the other test results.

I am pretty much in the same timing. My scan is on the 27th. I will get the results on Sept 9th....

All the best.
Cheers,
mob 8)
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: 1 Year Scan

Postby Punky44 » Mon Aug 19, 2019 11:30 pm

Sending you good vibes!! I know the feeling—already dwelling on my mom’s next one in October.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Deb m
Posts: 521
Joined: Tue Jan 14, 2014 10:08 am

Re: 1 Year Scan

Postby Deb m » Tue Aug 20, 2019 8:30 am

Hoping for a clean scan. I perfectly understand your anxiety!

Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: 1 Year Scan

Postby Beckster » Tue Aug 20, 2019 2:01 pm

Sending positive vibes for a clean scan....I hate scanxiety!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: 1 Year Scan

Postby MeAndMine » Wed Aug 21, 2019 6:43 am

Fingers crossed for a great scan. Scanxiety is the worst!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

crikklekay
Posts: 92
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: 1 Year Scan

Postby crikklekay » Wed Aug 21, 2019 10:08 am

Thank you everyone, I appreciate it <3 mobrouser I know how you feel, the scan and blood work are this Saturday but we won't find out the results until next Thursday! I'm not sure how I'll keep from worrying myself into a coma for five days but my coworker helpfully said "Just don't think about it". John isn't worried at all so I guess I worry enough for the both of us haha.
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear

DarknessEmbraced
Posts: 3382
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 1 Year Scan

Postby DarknessEmbraced » Tue Aug 27, 2019 12:49 pm

I hope he gets good scans!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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