Long time no see! We're coming up on our 1 year CT Scan this weekend and to say I'm anxious about it would be an understatement. I have a hard time talking to anyone about scanxiety as they don't quite understand, and it's tiring when the response is a patronizing pat on the back coupled with "everything will be fine, stop fretting!" I've been able to hold off the worst of my anxiety until recently since it's looming right around the corner.
His 1 year colonoscopy went well, only 1 polyp and it was benign. His CEA levels have continually dropped and other than some weird anemia issues that were resolved his blood work has been normal except for one value: the alk phos. That stupid number has stayed high all year, but since all his other liver numbers are perfect they aren't very concerned and believe it to be fatty liver. That might be because while it's high I guess it isn't dangerously high but I would be a lot less worried if all his tests were within normal ranges. Much to his dismay I ask frequently how he's feeling, if his bowel movements are normal, has he had any weird or new sensations, etc. and for the last few months everything has been fine. Or as he likes to say, "Normal for me". So I'm trying to cling to those good things in hope the scan will come back clear and start a second year in remission.
You guys have been right here with me for our journey so far, so since I need a little extra support coming up on this milestone I thought I would make a post. This place has always made me feel a little less alone <3
Caring for DH John
Stage IIIC, Lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
2019/2021 Colonoscopy Clear
2019/2020/2021 CT Scan Clear
2021 PET scan shows activity on liver
2021 MRI confirms one spot on liver