I'm 10 years out!

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ranger
Posts: 349
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

I'm 10 years out!

Postby ranger » Wed Aug 14, 2019 11:44 am

Hi everyone, it's been 10 years since my cancer was slashed, chemo'd and evicted from colon and liver.
I'm posting to give hope to others who have bad odds at diagnosis.
We are celebrating my cancerversary today and you are welcome to celebrate along in any way you choose.
Cancer is an ugly beast but it can't kill everybody. So there.

@cancerIsSoFunny
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 69, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

tater
Posts: 128
Joined: Wed Jul 19, 2017 5:53 pm

Re: I'm 10 years out!

Postby tater » Wed Aug 14, 2019 12:45 pm

Love these stories. Thank you and congratulations on ten years.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

annieliz
Posts: 52
Joined: Fri Jul 26, 2019 5:13 pm

Re: I'm 10 years out!

Postby annieliz » Wed Aug 14, 2019 1:14 pm

Congratulations! It's so encouraging to hear stories like yours. Thanks!
66 Female
7/15/19 Colonoscopy
7/26/19 DX: Rectal Adenocarcinoma
CEA 8/8/19-1.9, 12/6/19-2.3, 2/28/20-1.7
8/16/19 - 11/23/19 FOLFOX - 8 rounds
10/9 flex sig ~30% shrinkage 11/27/19-a bit more shrinkage
Neulasta 9/29/19, 10/27/19, 11/24/19
25 days Xeloda and radiation 12/17/2019 - 1/22/20
Robotic LAR 4/14/20 - clear margins - 0/15 nodes
Temp ileostomy

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: I'm 10 years out!

Postby juliej » Wed Aug 14, 2019 6:18 pm

Thanks so much for posting your very good news! :D :D :D

10 years! One decade! A freaking lifetime if you're a cancer patient. Congratulations - and best wishes for a long and healthy life!!!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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horizon
Posts: 1548
Joined: Tue Apr 12, 2011 10:10 pm

Re: I'm 10 years out!

Postby horizon » Wed Aug 14, 2019 7:19 pm

Huge milestone! Congrats.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

kiwiinoz
Posts: 1151
Joined: Thu Jan 03, 2013 11:44 pm

Re: I'm 10 years out!

Postby kiwiinoz » Wed Aug 14, 2019 9:20 pm

you were one of the ones that inspired me when I first joined and I am glad I am here to be reading your email
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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CRguy
Posts: 10234
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm 10 years out!

Postby CRguy » Wed Aug 14, 2019 11:59 pm

juliej wrote:Thanks so much for posting your very good news! :D :D :D
10 years! One decade! A freaking lifetime if you're a cancer patient. Congratulations - and best wishes for a long and healthy life!!!
Juliej



Hey Ranger I just had to quote JJ here
she said it ALL

Cheers and Harmony

FOREVER !

CRguy on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1383
Joined: Sat Aug 17, 2013 5:46 pm

Re: I'm 10 years out!

Postby stu » Thu Aug 15, 2019 3:15 am

Great news . Glad to hear your well and enjoying life .
My mum is ten years this week too !

So glad you popped in and gave out some hope .

Keep enjoying ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Punky44
Posts: 446
Joined: Mon Oct 01, 2018 4:29 pm

Re: I'm 10 years out!

Postby Punky44 » Thu Aug 15, 2019 10:29 am

Congratulations!!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

mariane
Posts: 680
Joined: Sun Sep 13, 2015 6:16 pm

Re: I'm 10 years out!

Postby mariane » Thu Aug 15, 2019 9:26 pm

Congratulations!!!
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Gravelyguy
Posts: 323
Joined: Thu Jul 05, 2018 6:03 pm

Re: I'm 10 years out!

Postby Gravelyguy » Thu Aug 15, 2019 9:57 pm

Wonderful, just wonderful!!!!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

User avatar
GreenLakeGirl
Posts: 773
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: I'm 10 years out!

Postby GreenLakeGirl » Fri Aug 16, 2019 1:18 pm

Congrats! I'm joining the decade club along with you. I feel the need to acknowledge this milestone, but haven't decided how. Are you doing anything?
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

ranger
Posts: 349
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

Re: I'm 10 years out!

Postby ranger » Fri Aug 16, 2019 1:33 pm

I appreciate your great replies and hope there's a lot of people out there who feel encouraged.
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 69, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

AmyG
Posts: 352
Joined: Tue Dec 25, 2018 8:08 pm

Re: I'm 10 years out!

Postby AmyG » Fri Aug 16, 2019 6:28 pm

I'm encouraged!!!

That's going to be me in 10 years.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

DarknessEmbraced
Posts: 3499
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm 10 years out!

Postby DarknessEmbraced » Tue Aug 27, 2019 12:55 pm

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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