Hey, Vana3, welcome. I wrote a reply that I seem to have accidentally deleted.
To summarize, you mention that you are not Lynch, which leads me to wonder if you were tested for it because your tumor was dMMR, which means you are likely to be MSI. If so, you might want to look into studies where you could get immunotherapy as a first-line drug.
If you are KRAS wildtype, you could benefit from Vectibix or Erbitux along with one of the chemo regimens, folfox, folfiri, or folfoxiri.
If you know you KRAS, BRAF, and MSS/MSI status, add them to your signature. If not, get copies of or access to the reports.
I would strongly suggest getting a second opinion at a major cancer center. Any good oncologist should be on board with that. Mine sent me to Dana Farber. I'd also suggest going for the kind of doctor ginabewell describes. Someone who who think is aggressively going to try to get you to NED/cure you.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable