Question about wound under ostomy adhesive

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Rock_Robster
Posts: 184
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Question about wound under ostomy adhesive

Postby Rock_Robster » Sun Aug 11, 2019 4:35 am

Hi all,

I’ve asked this question on an ostomy forum too, but given there’s no doubt a number of ostomates here I thought I might cast a wider net for ideas!

I have a temporary ileostomy. My ULAR was done robotically and most of the small wounds have healed well. However there is one wound quite close to my stoma, so it is underneath the adhesive. Whenever I change the bag, removing it reopens the wound so it refuses to heal. If I put anything bigger than a steri-strip on it, I’m worried it will compromise the seal and I’ll have a leak.

So - does anyone have any advice for healing wounds underneath the adhesive? Ideally I’d love some way to protect it while it heals, without compromising the seal. I’m restarting chemo tomorrow and would prefer not to have a permanent hole in my abdomen :)

Thanks,
Rob
Male 37 yr; Melbourne, Australia. BMI 24
10/2018 Dx 3.5 cm RC adenocarcinoma, 12cm from AV
Mod diff (G2), EMVI+, LVI+, PNI-
3 local LN; 4 liver mets, resectable
pT3 pN1a pM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
12/18 - DVT
3/19 - Liver resection (open); R0
4-5/19 - 25 x pelvic radiation w Xeloda; complete metabolic response (TRG 3)
07/19 - ULAR (robotic), temp ileo. R0; 1/27 LN positive
08/19 - FOLFOX x 2-4

Gravelyguy
Posts: 177
Joined: Thu Jul 05, 2018 6:03 pm

Re: Question about wound under ostomy adhesive

Postby Gravelyguy » Sun Aug 11, 2019 7:09 am

Rob,

Probably Captain Obvious, but I had to trim one side of my adhesive ring to avoid my navel. Is your incision close to the edge where you could do something like that?

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Rock_Robster
Posts: 184
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Question about wound under ostomy adhesive

Postby Rock_Robster » Sun Aug 11, 2019 7:22 am

Gravelyguy wrote:Probably Captain Obvious, but I had to trim one side of my adhesive ring to avoid my navel. Is your incision close to the edge where you could do something like that?

Thanks Dave, good thought. I’ll have a look when I change in the morning but I think it’s further out - outside the adhesive ring I use (Coloplast Brava mouldable), but still underneath the adhesive from the bag connection (I think this is the wafer?).
Male 37 yr; Melbourne, Australia. BMI 24
10/2018 Dx 3.5 cm RC adenocarcinoma, 12cm from AV
Mod diff (G2), EMVI+, LVI+, PNI-
3 local LN; 4 liver mets, resectable
pT3 pN1a pM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
12/18 - DVT
3/19 - Liver resection (open); R0
4-5/19 - 25 x pelvic radiation w Xeloda; complete metabolic response (TRG 3)
07/19 - ULAR (robotic), temp ileo. R0; 1/27 LN positive
08/19 - FOLFOX x 2-4

peanut_8
Posts: 2325
Joined: Sun May 25, 2014 1:31 pm

Re: Question about wound under ostomy adhesive

Postby peanut_8 » Sun Aug 11, 2019 8:10 am

Rock-Robster,

I recall Karen/Miss Molly recommending this product in the past. It's sounds like it's the gold standard for situations like yours.

Marathon liquid skin protectant

https://www.woundsource.com/blog/produc ... protectant

Best Wishes,
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Rock_Robster
Posts: 184
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Question about wound under ostomy adhesive

Postby Rock_Robster » Sun Aug 11, 2019 8:20 am

peanut_8 wrote:Marathon liquid skin protectant

https://www.woundsource.com/blog/produc ... protectant

This looks perfect! Thank you very much peanut_8 (and by proxy, Karen/Miss Molly) :)
Male 37 yr; Melbourne, Australia. BMI 24
10/2018 Dx 3.5 cm RC adenocarcinoma, 12cm from AV
Mod diff (G2), EMVI+, LVI+, PNI-
3 local LN; 4 liver mets, resectable
pT3 pN1a pM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
12/18 - DVT
3/19 - Liver resection (open); R0
4-5/19 - 25 x pelvic radiation w Xeloda; complete metabolic response (TRG 3)
07/19 - ULAR (robotic), temp ileo. R0; 1/27 LN positive
08/19 - FOLFOX x 2-4

hawkowl
Posts: 121
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Question about wound under ostomy adhesive

Postby hawkowl » Sun Aug 11, 2019 10:04 pm

I have a lot of experience with wounds near my ostomy as I suffer from pyoderma gangrenosum. I have had the best luck bu compressing with dilute white vinegar and then applying a piece of a hydrofera blue ostomy ring over any open areas. I then apply a brava pad (cut to fit around my stoma and cover everything that might be open) and finally my actual barrier ring and wafer. I have tried many other methods but this has reliably and quickly healed every ulceration and hasn’t interfered with my pouch adhering at all. Good luck
Dx 12/2014 T3N2MX (iliac nodes) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

User avatar
CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Question about wound under ostomy adhesive

Postby CRguy » Sun Aug 11, 2019 10:42 pm

peanut_8 wrote:I recall Karen/Miss Molly recommending this product in the past. It's sounds like it's the gold standard for situations like yours.
peanut

I posted into another topic to enquire about Karen ... BUTT ... with no response so far

If you have any info, it would be much appreciated if you could share it ???

We understand if she does not wish to post herself,
BUTT ... it would be in keeping with the spirit of this forum
to at least let her know we are still thinking about her and keeping her in our hearts.

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Rock_Robster
Posts: 184
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Question about wound under ostomy adhesive

Postby Rock_Robster » Mon Aug 12, 2019 6:11 am

Thanks again everyone. I spent ages searching online for the Marathon liquid skin in this developing country we call Australia, finally found some for $80 and 2 weeks delivery. Then I realised the only ingredient is cyanoacrylate - aka super glue! But don’t worry, I didn’t use super glue. But I did find another cyanoacrylate at my local pharmacy for $9.99, so I’ve started using that today.

In the meantime by chance I ran into an ostomy nurse at my chemo treatment today, and she gave me some duoderm to cut and try under the wafer if the liquid skin doesn’t do the trick.

Cheers
Rob
Male 37 yr; Melbourne, Australia. BMI 24
10/2018 Dx 3.5 cm RC adenocarcinoma, 12cm from AV
Mod diff (G2), EMVI+, LVI+, PNI-
3 local LN; 4 liver mets, resectable
pT3 pN1a pM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
12/18 - DVT
3/19 - Liver resection (open); R0
4-5/19 - 25 x pelvic radiation w Xeloda; complete metabolic response (TRG 3)
07/19 - ULAR (robotic), temp ileo. R0; 1/27 LN positive
08/19 - FOLFOX x 2-4

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Question about wound under ostomy adhesive

Postby NHMike » Mon Aug 12, 2019 2:21 pm

After surgery, they had a wound product but I don't know the name of it It left something like a moderately thick transparent tape but the middle of it wasn't sticky. So it was like a big, transparent band-aid. That went over the wound and then the Ostomy stuff went over that.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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