I have to take Imodium and fiber for bathroom issues. I try staying on BRAT diet mostly.
Sometimes I have no idea why one day is better than another.
MeAndMine wrote:I have to take Imodium and fiber for bathroom issues. I try staying on BRAT diet mostly.
Sometimes I have no idea why one day is better than another.
Are you still on the BRAT diet Sue? I was on it for so long and was afraid to deviate from it but all of a sudden I think I have gone the other way. It'd be nice to just be normal!
During treatment I ate a lot of cottage cheese for the protein. I used to love it but one day I thought I could never eat it again because of having to have it so often. This week I was craving it and had a bowl just because it's good. I need to get back on the high protein. Back then I tried to get at least 100 grams a day but now I'm afraid of constipation so I'm not eating as much meat or cottage cheese as I was then.
How's your weight holding up? I'm not staying steady yet but not losing as fast as I was. I at least want to maintain where I am now and quit losing. I hope you are healed and feeling great! I'm way better than I was before, probably at 75%. I'm sure it would have healed better had I continued to keep up with the protein. I was really good about it during treatment but only because I was afraid to take the Xeloda without eating well and even if I didn't get enough calories, I made sure most of them were protein.
One day at a time! I hope you are back on your feet and feeling great. It's really nice to be on the other side of the first leg of the journey.
I had a lot of skin changes with chemo. My toes and fingers got really dark, especially on the back. I had brown spots on my face and some other areas too. The brown color eventually went away after chemo though some of the spots remain.
On asking about family history - this can help them with treating you or it could help for research purposes. It might make it easier if you wrote down the answers beforehand where you can be composed and then just hand them what you wrote. I sometimes do this in answer to question at the doctors office. Yesterday, one medical student and one NP asked me about frequency. I just handed them my iPad showing what a really bad day was like. They asked about an exercise that I did that resulted in a pop around the ileostomy site and some abdominal pain as well. I just showed them a video of me doing the exercise.
So it may be one way to answer questions that you know are coming ahead of time. It might also be easier if someone interviewed you and wrote them down at home.
MeAndMine wrote:I do keep a lot of notes on what is going on but they need to be combined and digital. I keep up with my nutrition on a website then I write everything about the bathroom on a notepad that I keep beside the bed. I have to look at the nutrition info and try to compare to see what may have caused what reaction.
I am or have been very computer literate and have always been the one the family calls to fix their devices, both software and hardware, but when it comes down to it, I love a pad and paper. I prefer a paper calendar and paper notes but have moved to a digital calendar to share appointments with family. I need to find a cohesive app that I can combine my food journal with my bathroom habits, lol. That doesn't seem to be like a much needed thing for most people. Maybe I should just put it down in notes on my phone.
NHMike wrote:
Carbs are generally less filling compared to fat and protein so you can probably get more calories by going with carbs over protein though, yes, you do need protein. I like cottage cheese too but you have to eat it fairly quickly as it can go bad in a short period of time. I haven't had it for a while - I should pick it up at the grocery store.
MeAndMine wrote:I have to take Imodium and fiber for bathroom issues. I try staying on BRAT diet mostly.
Sometimes I have no idea why one day is better than another.
Are you still on the BRAT diet Sue? I was on it for so long and was afraid to deviate from it but all of a sudden I think I have gone the other way. It'd be nice to just be normal!
During treatment I ate a lot of cottage cheese for the protein. I used to love it but one day I thought I could never eat it again because of having to have it so often. This week I was craving it and had a bowl just because it's good. I need to get back on the high protein. Back then I tried to get at least 100 grams a day but now I'm afraid of constipation so I'm not eating as much meat or cottage cheese as I was then.
How's your weight holding up? I'm not staying steady yet but not losing as fast as I was. I at least want to maintain where I am now and quit losing. I hope you are healed and feeling great! I'm way better than I was before, probably at 75%. I'm sure it would have healed better had I continued to keep up with the protein. I was really good about it during treatment but only because I was afraid to take the Xeloda without eating well and even if I didn't get enough calories, I made sure most of them were protein.
One day at a time! I hope you are back on your feet and feeling great. It's really nice to be on the other side of the first leg of the journey.
You guys are making me hungry for cottage cheese. That used to be a favorite for me, but it just doesn't exist in Germany. Adding it to the list of things to eat next week!
I use iCloud notes for recording things. Notes sync between my computer, iPhone and iPad. There are similar apps for Android and there are third party apps like One-Note, Evernote and so on. So you can record it on one device and it shows up on all your other devices.
Hi there ! Great to see you are feeling better !!!
I’m doing well. Not in anymore pain and energy level is up !
Think pain just wears you out.
Bathroom issues better, not resolved, but improving.
I’ve ventured out into trying and testing other foods.
The nurse said introduce one at a time, but was at a friend’s this weekend and
starving by dinner, I cast the applesauce I brought aside, and tried a little bit of a few new foods, including a dessert, without any repercussions. WooHoo !
Haven’t lost or gained any weight since radiation ended. Will be 4 weeks Friday.
Only skin issues I have is dry, cracked feet.
And my feet feel especially cold sometimes and weird/tingly. Don’t know if it’s neuropathy
just from the Oxaliplatin in the Folfox I already had, or in combination with Xeloda.
Am looking into how to address this, since it’s sticking around.
Mostly I’m grateful for feeling more like my old self again.
suereal wrote:Exercise is on my mind. Will prob start with therapeutic yoga and indoor walking before mall opens.
I have done water aerobics and treadmill at the gym for years, but feel weird about the chlorinated
water now.
NHMike wrote:suereal wrote:Exercise is on my mind. Will prob start with therapeutic yoga and indoor walking before mall opens.
I have done water aerobics and treadmill at the gym for years, but feel weird about the chlorinated
water now.
I don't think that I'd go into a pool or the ocean with skin issues as the salt water or chlorinated water could exacerbate them.
I have a goal of running 40 miles in a week. I did that the week before being diagnosed in 2017 and haven't done anything close to that since then.
It's good to have exercise goals, even if they take a while to achieve them.
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Users browsing this forum: Google [Bot] and 145 guests