dani.biri wrote:I'm new here. I have been reading your posts for a few weeks. I was diagnosed about 2 months after you. I wish I had some helpful advise for you. I've been reading everyone's posts to see what will be in the next few weeks to come. I have been on Oral Capcitabine for the past 12 days. I'll have 1 week off and the start Chemo/radiation. I have felt Great so far... But I know this to shall pass! Of course we are all here to do One thing...Beat it! I really do wish I had some advise for you to relieve your pain. Stay positive, I'll be following along and here to cheer you on.
Thinking of you Dani and wishing you good luck as you begin radiation tomorrow! Remember to drink lots of water and lotion your skin well after treatment each day. I was told to get treatments with a full bladder to protect your bladder and I think they said it also lifts other areas up out of the way. Not sure if you were told to do that but just passing it on.
Also wash off any ointment or lotions before treatment. And don’t wash with soap as it burns. My doctor said to use Dove but others recommended pure glycerin soap like Pears. One of the doctors said not to use anything 4 hours before treatment. Another said 6 and another said only use it the night before. I stuck with 4-6 hours and bathed before treatment.
I carried a ziplock bag with different gels or ointments and went into the bathroom after treatment to apply. I made sure to use it everywhere but the inner folds in front because I always thought you’re not supposed to use anything there. That’s where I ended up with the worst burns in the end. It is probably because of where my tumor is located, so low down. But maybe you could ask if there is anything they suggest you could use.
My radiologist wasn’t big on preventing anything. He only wanted to talk if something happened. My oncologist didn’t suggest much but did look up things if I asked if I could use it. My surgeon has been the best about finding things to help. All that is to say, ask everyone you come in contact with if they have any suggestions if you need help. There are lots of opinions and lots of ideas and something will do the trick!
Good luck tomorrow. It really does go by faster than you think. You’ll do great and be on the other end before you know it!